Actually the current NICE guidelines make it clear that there is no evidence to support the use of CBT or GET for those with severe ME, and that...
Well I tried to read it, but it isn't in my language of choice.
As you can guess, I have been thinking a lot about illnesses lately. Going back to my twenties, I went down with chicken pox, which was really...
I think some carers can be a more reliable source for information than patients: that is certainly true in my household. My wife spots when I am...
I was involved for a while working on a website for a charity for the deaf, and we tried to use photos of actual members. They did give an air of...
I think the interesting part is my clarity of thought. This was when I was "trapped" in my hospital room (covid restrictions) and when my...
I remember a conversation I had way back with AfME about their use of stock photos, and the artificial image that was portrayed. Their argument,...
I've been on a low dose (10mg) of prednisolone for a long time to stave off bad head pains. Strangely, after my recent bout of covid, in hospital,...
I wish they took the same attitude when printing some of the editorials about ME.
My brain has been scanned a couple of times, but not for ME. I was told I had some scattering of "white nodules" (I think), and when I said that I...
Actually the Sussex and Kent ME/CFS society was running before Colin Barton took over, and I gather there was some unpleasantness. Certainly...
With PACE, the uptake of benefits increased a little. You need to look at the table in the McCrone et al report on the "cost benefits"....
One of the key questions to ask any clinician who claims that CBT and GET are successful is to ask about follow-up assessments. Do those patients...
Liverpool "No formal follow-up due to the limited resources and our remit to cover the North-West Region. Patient can be re-referred and contact...
Unsurprisingly, when we carried out our Freedom of Information trawl of ME/CFS clinics in England, we found that virtually none of them would have...
Thirteen people and relying on questionnaires? Time I carried out a study to show that bald, retired mathematicians are beautiful. Quote "The LP...
So, has my covid (in Feb) added to my ME? I'm certainly struggling to get back on to my usual plateau.
I ought to add though that I was and am on the mild/moderate side. That makes a massive difference. I don't know how he would have handled it if I...
I too needed a clear statement that I would not recover in the forseeable future in order to get ill-health retirement. I was diagnosed by Prof...
Every three years when you reach 70!
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