And, sadly, this is one area where few medical professionals have much in the way of skills. Recently, in hospital, one doctor wanted me to start...
But surely VO2max is a measure of fitness: more specifically of endurance. Deconditioning implies a change in an individual's level of fitness....
Does "deconditioned" actually exist? Less fit than before certainly does: in my case that wouldn't take much proof. But before I had ME I was...
LC? I had an aunt LC.
One of the hardest things with pacing is that there is no sudden marker to say "Whoa! You've done enough!". My wife sees me starting to go a bit...
Oh, @Milo , you certainly defined what was at the root of the mess during my times in hospital. Everyone had well-defined responsibilities: no-one...
There are certainly many people with ME who need to be told, repeatedly, by professionals, particularly physios, that they cannot exercise through...
We keep hearing from "experts" who claim that their treatment is effective, and yet, when you dig further into it, there is no long-term...
I must admit that after a year of various hospital stays, my physical strength has dropped markedly. This makes me remember a man who completed a...
I have thought a lot about this over the years, especially with Sharpe, Wessely, White, Chalder and Crawley. I don't know any of them, have never...
That would be good. My understanding is that much of the cognitive testing looks at cognitive performance compared with "normal". The problem with...
When I first went down with ME I reported to the doctor that alongside the pain and cold ache in my legs my toenails had stopped growing. I just...
I think this lack of follow-up is a crucial element in bad medical practice, and is why Jon's comment to the NICE committee about the ME clinics...
Very interesting. It's amazing what can be learned from medical history, and how little doctors have learned from it. There was an article...
You may be interested in this article from The Conversation about the unreliability of sleep trackers. with a variety of related sleep articles...
It frustrates me when such people expect us to accept small improvements in answers to questionnaires on health as evidence of efficacy, yet deny...
It was well worth the struggle to read it, @EducateME !
I don't worry too much about the definition of brainfog. My analogy is with driving. I used to cruise along an open, country road, listening to...
Apart from the fact that I have never yet had a crash like Invdivisible Woman (who can't be parted from her dog), I'm pretty much the same. I used...
Agreed, not counting chickens, but NICE, parliament debates, the MRC and even NIHR investing a thimbleful in biomedical research ... just think...
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