Sorry to disagree folks, but I find cupping a very effective way of helping my ME. Cupping a large mug of steaming, freshly filtered coffee in my...
Sorry, forgot to answer. No, not at all. But my diet is pretty good anyway. I do keep trying to come off the steroids, but it's such a poor...
Thanks for such a clear explanation. I wish I had had just one or two doctors, who could have seen me buckling under the system and explained it...
Hi all. I'm trying to understand what is going on: I'm not looking for medical advice (which we avoid doing here anyway) but trying to wrap my...
Thanks @Helen . No, I hadn't heard of it: it's quite difficult to underestimate my ignorance in many matters! Step outside of PACE, limericks and...
I mean a scientifically combative approach, challenging them to justify their stance after providing evidence to the contrary. It is possible to...
The sad part of it all is that all of the medical folk I came across, along with all of the support staff, were actually very caring and...
I honestly don't think a card would work. What it needs is a combative approach, delivered in person to the key clinicians, so that they can each...
It was immensely frustrating to be visited by 30 or so different doctors, each clutching their piece of paper, asking the same questions and...
Thanks! I'm climbing out of the pit, but sleeping a lot. A long dose of two types of antibiotics at the moment, in the hope that the cysts on my...
Ah yes, that dreaded mid-range electromagnetic radiation as well, the sort that wakes me up in the morning: that needs investigating. Summer is...
I have had a little time lately to do some thinking, and have decided that it is time to name this new syndrome. I call it CCFS – chronic CBT...
Thanks all for the support. I got back home yesterday afternoon. Will post properly when I start to pick up! Finally getting some treatment that...
Thanks all! I went in around midnight: cannula fitted, drugs kick in, 1:00. X-ray of lungs, 2:00 first doctor examines and asks questions, 3:00...
Thanks. Natalie has kept me in the loop: she's a very nice person! I really miss Bob: he introduced me to all of you!
Wow, "daily CRP"!!! I'm home, had an outpatient appointment yesterday, took blood, CRP around 30 (I had to ask the doctor and that's what he...
Thanks all. I was somewhat sceptical of the leaky gut idea, and, as you quite rightly point out @Jonathan , the logic of a single infection...
Late at night on April 26th I was carted off to hospital with a pretty bad infection. No, not COVID, although I had to go into the COVID A&E side...
I know I'm late here, but I'd just like to note that she did a lot of work behind the scenes. In particular she tried hard to get the Lancet to...
I tend to work more with analogies when I want to get my brain around something, and to me the search for the rogue trigger (the missing chemical)...
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