There's a great thread on twitter related to this. It's little wonder the research on ME/CFS is getting nowhere when doctors and specialists are...
Spot on. It's time for it to go. I've never once used the word 'fatigue' to describe my symptoms in 23 years with this illness. I feel sick, not...
I agree. We're the modern day equivalent of lepers.
He's taking debating tips from Trish Greenhalgh then? ;)
Haven't the cancer survivors suffered enough?
He appears to have changed his mind after his life-altering phonecall with a certain Norwegian Lightning Process coach:
I'm willing to bet that the scientific trials that purport to show benefit from psychotherapy are as poor quality as those on CBT and GET in...
Psychotherapy isn't a scam? It's certainly quackery in my book.
https://www.s4me.info/threads/michael-sharpes-long-covid-presentation-to-swiss-re.19912/ It might be worth backing it up somewhere else in case...
Although those 'secondary gains' from their imaginary illness will prove to be too enticing for many of them.
I agree. PEM for me feels like I am severely hungover or poisoned. That it isn't mentioned is a serious omission in most ME/CFS research in my...
An article about an Australian study on LongCovid. Of course there's no mention of ME/CFS and there's the implication that this phenomenon has...
Spot on. In Australia, PACE still very much embodies the prevailing view of ME/CFS in medicine here. I've told doctors that PACE has been...
There's nothing too earth-shattering: [ATTACH]
Your latter explanation seems to be a common experience. A proportion of people are saying that their initial infection with covid was mild and...
Given that many cases of post-viral illness seem to resolve naturally over time, it's possible that there will be recoveries that coincide with...
From what I'm seeing, that is the norm. In fact, I would say the vast majority of Longhaulers are being fobbed off with "anxiety" and...
I had a quick look through a local ME/CFS group because the use of spironolactone rang a few bells. The main author is a specialist at Noosa...
An endocrinologist here trialled Spironolactone on his ME/CFS patients in the late 1990s. An old friend from uni happened to be a colleague of his...
Given that Long Covid sufferers are well organised and many use social media (and other platforms), perhaps they will organise a patient boycott...
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