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  1. JaimeS
    Post

    What is the course of your ME/CFS?

    Thrush? Cryptococcus?
    Post by: JaimeS, Nov 19, 2017 in forum: Post-Exertional malaise and fatigue
  2. JaimeS
    Post

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    Ugh. That was one of my least favorite aspects of the illness, the "wired but tired". Have you found anything that helps? [Edit: maybe PM me,...
    Post by: JaimeS, Nov 19, 2017 in forum: Post-Exertional malaise and fatigue
  3. JaimeS
    Post

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    I'll wake up and an entire limb will have gone numb in the night! Not because I'm sleeping on it funny... just because. :confused: Bloodless is...
    Post by: JaimeS, Nov 18, 2017 in forum: Post-Exertional malaise and fatigue
  4. JaimeS
    Post

    What is the course of your ME/CFS?

    Just goes to show how the disease shifts. :) If you'd have asked me a month ago, I'd have said the same. This is the first cold I've caught in...
    Post by: JaimeS, Nov 18, 2017 in forum: Post-Exertional malaise and fatigue
  5. JaimeS
    Post

    Open (MA, USA) “Brain Scan Study [PET-MR] of ME/CFS, 2023, VanElzakker

    I've asked him; I'll let you know if he responds. He may be pretty inundated just now.
    Post by: JaimeS, Nov 16, 2017 in forum: Recruitment into current ME/CFS research studies
  6. JaimeS
    Post

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    There's your cortisol being super-low. A lot of people (ppl with "chronic fatigue") feel pretty bad at that time because that's when their...
    Post by: JaimeS, Nov 16, 2017 in forum: Post-Exertional malaise and fatigue
  7. JaimeS
    Post

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    Yep
    Post by: JaimeS, Nov 16, 2017 in forum: Post-Exertional malaise and fatigue
  8. JaimeS
    Post

    What is the course of your ME/CFS?

    I don't feel like 'remitting' and 'remission' are the same term. To remit means to back off of something, not to recover. "A relapsing-remitting...
    Post by: JaimeS, Nov 16, 2017 in forum: Post-Exertional malaise and fatigue
  9. JaimeS
    Post

    What is the course of your ME/CFS?

    Just got through this... it's like first you fight the infection, and then you fight the complete immune depletion that is its result. By using...
    Post by: JaimeS, Nov 16, 2017 in forum: Post-Exertional malaise and fatigue
  10. JaimeS
    Post

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    Other. Between 8am and 11am ... and then between 8pm and 11pm. Two mini-surges of energy. Middle of the day, I get more and more useless.
    Post by: JaimeS, Nov 14, 2017 in forum: Post-Exertional malaise and fatigue
  11. JaimeS
    Post

    What is the course of your ME/CFS?

    @MeSci -- I used MS definitions for, as I said, swiftness. Our disease has been described before as relapsing-remitting, as has MS. I've also...
    Post by: JaimeS, Nov 14, 2017 in forum: Post-Exertional malaise and fatigue
  12. JaimeS
    Post

    What is the course of your ME/CFS?

    Secondary-progressive (relapsing-remitting, but general course of worsening) Primary-progressive (gradually worsening with no...
    Post by: JaimeS, Nov 14, 2017 in forum: Post-Exertional malaise and fatigue
  13. JaimeS
    Post

    What is the course of your ME/CFS?

    I believe so. MS is treatable even if not curable.
    Post by: JaimeS, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  14. JaimeS
    Post

    What is the course of your ME/CFS?

    To those who have discussed shifts in their condition, people with MS slide from one of these to the other as well. I'm also sure that many feel...
    Post by: JaimeS, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  15. JaimeS
    Post

    Research compilations - J.S and GOP

    Actually, it would be up to who owns them. ;) I think it would make sense to put research compilations on the same main webpage with links and...
    Post by: JaimeS, Nov 13, 2017 in forum: ME/CFS research
  16. JaimeS
    Post

    What is the course of your ME/CFS?

    Thanks, Kafka, I'll add them by hand. :) (For good reason) you can't change a poll once people have answered it.
    Post by: JaimeS, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  17. JaimeS
    Post

    What is the course of your ME/CFS?

    Considering you have times you feel better and times you feel worse, I'd choose #1. If you feel your overall course has been that you're getting...
    Post by: JaimeS, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  18. JaimeS
    Post

    What is the course of your ME/CFS?

    Might have been better to ask only people who've been sick more than 2 or 3 years. Note that it says "better wellness" in the description. That...
    Post by: JaimeS, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  19. JaimeS
    Post

    What is the course of your ME/CFS?

    I appreciate that. This is for curiosity's sake, not for a study.
    Post by: JaimeS, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  20. JaimeS
    Thread

    What is the course of your ME/CFS?

    I've asked on The Other Forum (TOF) as well, so please don't respond in both places. :) I'm wondering whether people who have ME/CFS are willing...
    Thread by: JaimeS, Nov 13, 2017, 96 replies, in forum: Post-Exertional malaise and fatigue
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