Hi @Action for ME Can I ask you, how many Charity members do you currently have (2018). And how many of your current members moved across...
Hi @Action for ME ..... Thank you for responding on this thread. It was me who PMed you to draw your attention to the existence of this...
Can A4ME member @Action for ME please respond to my Post xx
Holgate has wasted 10 years of our time. 10 years of our lives. We Are So Much Older Now. And many of us no longer expect to be still alive...
The severely/very severely sick ME Sufferers who were abandoned by AFME, and were fortunate to survive, if they actually survived, are the people...
Well said Alvin! Very well written. And so very astute !!!! We, ME Sufferers, are actually persecuted citizens! But we mostly dont choose...
From experience as a former AFME charity member, and former facebook member, long banned, I got the strong impression that afme operate a kind...
Also, pacing isnt treatment. It doesnt help anyone recover, pacing can help prevent us getting worse. Other factors are involved in...
AFME have had decades to catch up, understand and change/improve so they no longer support and collude with the damaging BPS policies and...
The content of this thread, O'Dowd and Crawley study, and AFME sponsored Webinars by Hazel O'Dowd for GPs. Maybe AFME could engage with the...
AFME have not participated on this forum, or responded to alerts. So there is no discussion with AFME going on.
The UK Biobank did not collude with PACE, facilitate funding Esther Crawley and Peter White's research, support the damaging NICE Guidelines etc etc.
Well reasoned and reasonable attempts to reason with, and educate afme, carried out by countless well informed patients/advocates, over decades,...
From the FiND ME Twitter page, January 2017, it says the site owners are Andy Bristow and Lewis Henshall. They say they will launch a campaign...
This person, a patient, was apparently diagnosed with FND and ME, and now calls it FND/ME. Worrying. He has a site...
I have been doing politically astute, really well reasoned stated, advocacy for over a decade. I have advocated to MPs, to Members of the House...
I was incommunicado for the first 10 years of ME, Very severely ill, but when I could be online, I made sure I was damn well informed before...
I am sorry.... There is no 'Black and white'.... It is actually Life and Death. There are too many ME deaths to continue to be 'nicey...
Sorry, but I so nearly died from ME and medical neglect, and social care neglect, so many times in the early years, to be 'nice' to well meaning...
Hi Gary..... I am glad that you tried to get publicity for us. That radio broadcast was so good. Well done. I do advise that you take advice...
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