I’ve been ready to move out of the city for a while, but the timing has just never been quite right. I am very fortunate that I was able to buy...
No, not yet:) this week has been crazy, with buying a house and seeing a neurologist, some issues after the biopsy last week and now negotiating...
Hm, maybe it’s the folate that has helped my headaches? I started taking methylfolate a short time before they lessened. I have high folate levels...
I finally saw the neurologist yesterday. She was nice and professional, took me seriously and seemed to respect my own knowledge and research. Not...
How are you getting on, @Dechi ? Only a few weeks left before the move if I remember correctly:) We bought a house yesterday, so I’ll be...
I’ve never been able to tolerate noice cancelling headphones for more than a few minutes, they make my ears itch and my head go all buzzy like...
Congratulations, @JaimeS this is great!
:(
I meant they will probably refer you without much fuss. Sorry if I was unclear :)
A differential diagnosis thread maybe?
@Arnie Pye have you been given a gastroscopy? Might be more relevant to your issues than endoscopy and could probably be arranged by your GP (if...
If cyclo works, hopefully they will be able to look more closely at why it works, and potentially find other alternatives that can have the same...
Right. I wasn't aware the criteria were that strict! And they stills end a big portion away because of new diagnosis?
Sounds weird, PwME are usually very eager to participate if they can (is my impression). What criteria do they use? And could it be that many have...
Judging by Emma’s tweets, this was Kristian Sommerfelt, the pediatric neurologist. This was a case study on a 56 year old female who had a...
Very interesting, I’m sure we’ll get more details from OMF/Ron later if it continues to be so:) From what I can skim through trypanosomiasis...
As in the parasite linked to African sleeping sickness? What was the link? *curious* :nerd:
I’m so sorry:confused::hug:
I can see the use for it, with permission from the patient. Did they ask you for consent?
45 minutes without a single tweet :( bah, I wish they were live streaming. Needless to say I don’t have much else to occupy me today:barefeet:
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