I think it's important to flag the Irish ME/CFS Association as wanting to be involved in the development of the guideline. I'll email you!
Thanks for posting about this, Tom. Well done to the MEAI for instigating this process. That's an achievement worth celebrating. I'm concerned...
Yeah, I have to do a quick calculation of which is worse that day - OI or legs? And then sit if it's OI and stay standing if it's legs. For me,...
I think it's what the tilt table takes away - it takes away your ability to compensate for what's happening by tensing your leg muscles against...
Hm, widening my stance wouldn't stop me fainting. And holding myself up would be the opposite of what I need if dizzy - I need to get to the...
More on how I deal with OI: Need to sit to shower, sit at sink to wash hands, sit cross-legged on bed to do anything that can't be done lying...
Oh! I left out the actual near-faint and faint symptoms, which comprise a very quick escalation of all of the previous symptoms especially...
Just a note before I begin: my account is that of someone with ME/CFS with a pre-morbid tendency to OI. For as long as I can remember, ie long...
I had a look at this. I wish they'd spelled out what the results could mean for patients' symptoms. Would greater activation mean that ME/CFS...
Regarding the tired-and-wired experience, a BBC article about sleep caught my eye recently...
Where was the copy editor? "X (plural) are (plural) a (singular) unifying diagnosis (singular) that includes Y (plural) as well as the unifying...
Clever and careful study. Can't wait to read this one properly on paper.
I wanted to understand what the wages mentioned in the paper equated to in other currencies. I used xe.com and I rounded to the nearest 500 to...
A little compare-and-contrast with the EEfRT in the NIH study by Walitt et al: Unlike Walitt et al, Scholing et al calibrated: Ability did not...
As others have said, talk to the professionals as there are many reasons for unintended weight loss, feelings of fullness etc. I have a similar...
Would functional MRI brain before and after alcohol in pwME and controls show anything useful?
Gotcha. Indeed. Can you explain a bit more the nature of the change in neurotransmitter function in the hypothalamus of pwME you think could be...
Where Parkinson's involves degeneration of nerve cells in the basal ganglia and the substantia nigra, and ME/CFS would involve degeneration of...
I think there's a relationship for me. The only other time I've had the sudden severe drowsy fatigue that I experienced with higher percentage...
When my ME/CFS was mild, I was still able to drink a little wine. But twice I had spirits - one glass of Pimms (no other alcohol before or...
Separate names with a comma.
