Re rheumatology: my experience of doctors from a wide range of specialties is that rheumatologists were the worst/most dangerous. I have seen...
Has anyone figured out something that helps at the dentist? I have to go soon, and think I shouldn't wear foam earplugs and Bose over-ears as...
This is beautiful, thank you both so much. Simon and the rest of us didn't have a choice. You had a choice, Chris, and that you chose not just...
That all sounds horrible to deal with. I think the confusion is that you and I are using the term OI differently. I use OI as an umbrella/parent...
Your pattern could still relate to OI if you're doing a lot of orthostatically challenging things during the day. I'm curious, do you have...
I am so much better cognitively in the evening, though it took me a long time to figure that out because I was still trying to do orthostatically...
The sentence doesn't mean what Miller wants it to mean. He has written that the description was attributed to mass hysteria, not that ME was...
Thank you for spilling! When you say "Maybe viral malaise provides one side of a vicious cycle", does that relate to "stay-at-home" in this...
It's as if you don't want to influence our responses. Don't you know how ME/CFS research works?!
Yep, I know what you mean. People with no gap are, by definition, going to be the ones filling out the poll most because they're the ones who are...
Interested to know what you think now that nearly 50 votes have been cast, @Jonathan Edwards? What does the lack of a well gap for most...
Really valuable blog, @ME/CFS Skeptic , thanks so much. Exactly.
If a person chooses the hard task every time, or the easy task every time, their data is deemed invalid! So for the deliberate strategy you...
Yes, the earnings for each of the 31 participants whose data were analysed are in the data available through MapMECFS. The excluded HV F does not...
Ah, OK, the research I have seen has not mentioned fructans. And the thrust of the paper discussion and discussion in the media is always "They...
Agree with others - the elimination phase is way too short. In these studies there's rarely (if ever?) mention of people who might be reacting...
I did. I didn't know why I felt rotten if I had a bath, or why I definitely needed a seat for the whole train journey in the morning but could...
I've read that people with higher physical activity decondition more than those with lower physical activity in those studies where they purposely...
Sorry @bobbler , my brain isn't able to follow all of these posts fully, but I can see you've made good points. I just wanted to point out that...
I'm finding this website brilliant for giving you the information you actually want: https://www.wheelfreedom.com/ They're in Surrey, UK. At the...
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