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  1. 5vforest
    Post

    Ginger-separated moxibustion for chronic fatigue syndrome and its effect on intestinal flora, 2021, Lin et al

    I have tried various TCM “things” at the onset of my illness; herbs, acupuncture, moxibustion were all part of the menu. I suspect that they are...
    Post by: 5vforest, Apr 7, 2021 in forum: Other treatments
  2. 5vforest
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    Just donated, big fan of your work. Can I ask a really basic / potentially silly question -- why does this work require crowdfunding? UC Berkeley...
    Post by: 5vforest, Apr 3, 2021 in forum: Fundraising
  3. 5vforest
    Post

    BPS attempts at psychologizing Long Covid

    It's pretty funny if you ask me. He obviously thinks he can get away with emulating the OG BPSers but he doubles-down a little too hard when the...
    Post by: 5vforest, Mar 23, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. 5vforest
    Post

    Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Crosby et al. 2021

    One thing I'll add to Trish's list: Surely they must have known they were considering a retrospective analysis, and they could have done a...
    Post by: 5vforest, Mar 22, 2021 in forum: ME/CFS research
  5. 5vforest
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    @vsou I suspect we might be talking about the same docs. There definitely seems to be an “in-crowd” that has formed.
    Post by: 5vforest, Mar 22, 2021 in forum: ME/CFS research news
  6. 5vforest
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I think the process is traction -> upright MRI -> send scans to Bolognese. My practitioner noted that one should always be careful when asking a...
    Post by: 5vforest, Mar 21, 2021 in forum: ME/CFS research news
  7. 5vforest
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    (This comment is not in response to anything posted above, I just wanted to report some stuff and now that this thread is front page again, I...
    Post by: 5vforest, Mar 21, 2021 in forum: ME/CFS research news
  8. 5vforest
    Post

    A comprehensive clinical and laboratory evaluation of 224 patients with persistent symptoms attributed to presumed tick-bite exposure (2021) Nilsson

    I glanced at this the other day, and was surprised to see it posted here. I just re-read the full thing in order to comment... So much work for...
    Post by: 5vforest, Mar 20, 2021 in forum: 'Conditions related to ME/CFS' news and research
  9. 5vforest
    Post

    Establishment of a continuous in vitro culture of Babesia duncani reveals unusually high tolerance to recommended therapies (2018, Abraham et al)

    Here is an interesting followup published today: https://www.frontiersin.org/articles/10.3389/fcimb.2021.624745/full Botanical Medicines...
    Post by: 5vforest, Mar 10, 2021 in forum: Infections: Lyme, Candida, EBV ...
  10. 5vforest
    Post

    Organ donation and blood donation

    I would love to donate my organs to science, not to a heathy individual who might then get sick as a result.
    Post by: 5vforest, Mar 10, 2021 in forum: Home adaptations, mobility and personal care
  11. 5vforest
    Post

    Treatment with Disulfiram (Antabuse) seems to help

    I am seriously considering trying Disulfiram again. I received a new Lyme Western Blot IgM that is way more positive than it ever has been, and my...
    Post by: 5vforest, Mar 4, 2021 in forum: Infections: Lyme, Candida, EBV ...
  12. 5vforest
    Post

    Our Evolving Understanding of ME/CFS (2021) Friedman et al.

    :emoji_warning::emoji_warning::emoji_warning: NEW ACRONYM ALERT :emoji_warning::emoji_warning::emoji_warning:
    Post by: 5vforest, Mar 1, 2021 in forum: ME/CFS research
  13. 5vforest
    Post

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (2020, Horowitz)

    The bar is quite low, yes.
    Post by: 5vforest, Feb 26, 2021 in forum: 'Conditions related to ME/CFS' news and research
  14. 5vforest
    Post

    Treatment with Disulfiram (Antabuse) seems to help

    Since it hasn't yet been posted, here is the Liegner article: “Repurposing” Disulfiram in the Treatment of Lyme Disease and Babesiosis:...
    Post by: 5vforest, Feb 26, 2021 in forum: Infections: Lyme, Candida, EBV ...
  15. 5vforest
    Post

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (2020, Horowitz)

    @Joan Crawford thank you for sharing your experience. Very interesting and glad to hear that it has helped. @unicorn7 I am similarly glad to hear...
    Post by: 5vforest, Feb 26, 2021 in forum: 'Conditions related to ME/CFS' news and research
  16. 5vforest
    Post

    Treatment with Disulfiram (Antabuse) seems to help

    i wonder if they will test the trial participants who haven’t already shelled out for extensive coinfection tests.
    Post by: 5vforest, Feb 26, 2021 in forum: Infections: Lyme, Candida, EBV ...
  17. 5vforest
    Post

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (2020, Horowitz)

    Horowitz also has a reputation of being a “hype man”. I really respect the guy and would see him as his patient if given the opportunity. But...
    Post by: 5vforest, Feb 26, 2021 in forum: 'Conditions related to ME/CFS' news and research
  18. 5vforest
    Post

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (2020, Horowitz)

    Yes. The problem with this article is that it is basically just one doctor saying “this is what I have been trying”. Which don’t get me wrong, is...
    Post by: 5vforest, Feb 26, 2021 in forum: 'Conditions related to ME/CFS' news and research
  19. 5vforest
    Post

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (2020, Horowitz)

    This is basically the latest and greatest research that exists for patients with long-term Lyme Disease / tick-borne infections. As it's just a...
    Post by: 5vforest, Feb 25, 2021 in forum: 'Conditions related to ME/CFS' news and research
  20. 5vforest
    Thread

    Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (2020, Horowitz)

    Three patients with multi-year histories of relapsing and remitting Lyme disease and associated co-infections despite extended antibiotic therapy...
    Thread by: 5vforest, Feb 25, 2021, 13 replies, in forum: 'Conditions related to ME/CFS' news and research
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