Good News: David Tullers critique of this article...
@Amw66 Similar to my son with ME. The doctor who diagnosed hEDS described him as Marfanoid but not actual Marfan syndrome. I think it had more to...
I have read this article multiple times now and have finally realised why something felt “off” about it, aside from the theme. I have a nagging...
Ah yes, Hamish Wilson, he heads the Mel Abbott The Switch Fan Club at Otago Med School
I don’t understand how these author’s get a paper like this published when they include no clinical experience of treating or curing Long Covid or...
These recent comments in this thread have been interesting. As a mother caregiver who only recently joined this forum I wish I had joined 5 years...
A short interview with David Coventry about his book Performance and MECFS. I’m sold after reading this. Ordering the book now....
@Hutan Thank you for your kind words. It is difficult when you cannot make things better nor give your kids certainty about improvement &...
I am seeking advice on how to determine if my son is experiencing an extremely long PEM Crash or if his baseline status has now transitioned from...
It would be so helpful if someone could put in an application based on doing research that documents the harms from GET/CBT & LP in the NZ...
They will all be desperate to recover.
@MelbME it is good to have you here. I am a mother or a teen with severe ME and my grasp on the science is basic so if you do reply please do so...
I despair. It is so pervasive and behind every example is a corrupted human being acting with intent to deceive others. There was an interesting...
@dave30th - You will find Rachel Whitfield easily enough on FB in LC forums & Optimum Health etc - posting links to her being interviewed about...
I have been keeping an eye out for other LP articles to see how Phil Parker responds and saw this one from Scotland. It is not great as it makes...
https://longcovidadvocacy.substack.com/p/tin-foil-hat-territory-the-gupta?r=1s0n2a&utm_campaign=post&utm_medium=web&triedRedirect=true Tin Foil...
Is that the most eloquent way of saying “we don’t give a F*@K about your complaint” ever?
@hibiscuswahine It is a tricky situation here in NZ. Arroll & others will never change their position on this and it seems that the GP College &...
@Hutan that is intriguing about Rachel Whitfield being the LP recovered person. I was not aware of her previously but on listening to her in the...
@Hutan I can understand you being disappointed because we know it could have gone so much further and been more damning. But I think it was fine...
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