A print "teaser" article has just appeared on the BBC website...
Some posts have been moved from Anyone tried Lightning Process for Long Covid? Here is the link to the promo for it live on Tuesday 21 May...
@Tapanui 'Flu I love this! You have such an endearing style & tone in your writing that draws me as the reader into your story like we are old...
In the same vein that pseudoscience is commonly perceived I’d suggest something like; pseudorehab, pseudotherapy, pseudocare or pseudocure. Other...
I spoke to her a month or so ago to give background to LP in New Zealand and I got the distinct impression she perceived LP as a dangerous &...
Rachel Schraer posted on Twitter that her story on LP & LC will be out next week on BBC and a documentary on Radio 4. I expect she will mention...
Due to time zones I could only watch the first few hours each day but based on what I did see I was impressed with the organisation, the content...
Sharing this here as I do not know if Jeff Lubell is a member and his comments are relevant to this thread. “If I have one plea for medical...
https://www.gofundme.com/f/help-ren-get-medical-treatment-for-lyme-disease Stem Cell treatment seems to have been years ago (2016?) and he is...
@DMissa & @Hutan - Re the question on PwME gaining less weight with comparable dietary intake I can add that this is the case for my son & at...
I don’t recall if it has been mentioned in this thread, but I’d like to have the inflammation of lymph nodes included. My son is in one of the...
I shudder to think of the disastrous effect this endless stream of noxious “science” ,and its promotion in health governing bodies & media, will...
I've watched a couple of the NIH NINDS ME/CFS Research Roadmap videos and I am struggling to reconcile that they come out of the same organisation...
Wikipedia pages for Simon Wessely & Michael Sharpe could be updated to include a summary of the George Monbiot Guardian article & link in...
Does anyone have a printed / PDF version of this original Medcase they can share with me? I am wanting to highlight the extent of the editing the...
I chanced upon this paper today and thought it could be of interest in the wider forum but did not know how to pitch or tag it. I will leave it to...
I was actually relieved because there was a risk any “new” expert advisory group could have included the self-proclaimed experts (BA) who are...
This thread reminded me of advice I got from an Ayurvedic doctor I consulted at a health spa at a resort in Malaysia 20 years ago. He recommended...
Thanks for that reply Hutan. It is helpful & makes me feel a little more comfortable sitting on the fence.
There is absolutely no reason that I know of for hypermobility being associated with ME. Thanks for your thoughtful and clear response to my...
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