I tried to look him up. At one point he was in the steering committee of mecvs foundation in the Netherlands. At his insta (not sure if it is him)...
[IMG]Alison McGovern The Minister of State, Department for Work and Pensions “[...] Appropriate work is generally good for health and wellbeing,...
Good points; Sometimes I have seen researchers say things like, ‘considering the research in ME’, and on that basis they make research...
I am also looking for a new one; my parents had a wool one that was lovely breathable and warm. Downside for me was that it was too heavy, so it...
Question; Is there an archive/database containing all research on ME? I found this data archive for cancer it looks very good (for someone who...
These are not the only worrying members. I am horrified.
I wish instead of mild (which isn’t mild at all) moderate and severe we would use stages, stage 1 to 5 or 6 and maybe use the scales of Whitney,...
Am I right in thinking that FOI is not applicable for Cochrane? Because they are not a governmental organization?
I wonder what influence their member structure and funders have. Their researchers also become members. And are involved in decision making....
Since so many millions have already been spent on psychoquackery it isn’t bias, they have had their fill and biomedical needs to keep up.
1) set criteria for the funding for example - biomedical research - no involvement of bps researchers - include patients in priority setting/...
I agree, I think HIV is a good example. They had to deal with a very negative label of their disease. They managed to turn that around and have...
Like Miranda a lot less, but LOVE her publicist! Miranda is everywhere in the media. Maybe the charities can spare some of their stash for this...
First priority imho should be lobbying government to; - increase funding - change the perception of ME - properly support patients As patients we...
I wish #thereforme could clone themselves to my country, @Karen Hargrave so impressed with what you are doing!
Cochrane and membership Since 2017 Cochrane is a membership organization. Who can become members? 1 Staff members in certain roles 2...
So if tests did not show a cause for complaints then you have a functional disorder, according to the authors of this study. That does not seem...
Maybe just a small change, so you can keep the recognition but explains your aim/standpoint better. For example me/cfs research sceptic or me/cfs...
This is from 2021 about the relationship between NICE and Cochrane...
[ATTACH] Andrew Gwynne also speaks of ME or CFS in his tweet. I worry about this. Are they thinking of separating ME from CFS?
Separate names with a comma.
