I'm quite a chill person, and really the only time I experience huge amounts of stress is either dealing with the benefits people or when I have...
How awful, that they know it's bad enough to consult with lawyers, but yet they still won't put a stop to the harm it's all causing! I just don't...
"expect things to happen then they do" I wish they didn't, but comments like this really hurt me deeply. I don't know about anyone else, but when...
Perhaps an opportunity to highlight the lack of a yellow card system, or the like, for patients to report harms... If you refuse to colect data on...
I don't understand. He says folks are coming in saying they've got MS or Diabetes, but also says he can't get folks with other illnesses? Sure...
I don't know if it's just in Scotland, but we have a thing called NHS SHARE ( https://www.registerforshare.org/ ) where you can sign up to agree...
I'm glad PG's better, and really hope it's true he is, and it's not just the LP tell everyone you're better / fake it till you make it... And...
Might be worth saving the testimonies on the twiter feed to compare to the research when it is published? I don't know how to do that though...
Please forgive my inability to remember specifics, but didn't someone, perhaps JohntheJack?, do a freedom of information request for some...
grateful thanks. Kx
I've gone from sleeping up to 18 hours a day to insomia (prob because of medication i've had to take since surgery last year.) On the rare...
Absolutely. I'd wait until the ME NICE guidance has been confirmed and we see they've not walked it back. But i would hope we wouldn't forget...
Sorry for just throwing things into the convo, my brain fog is bad at the moment, but i really care about the outcome of this. Hoping the scraps...
Do you think that even though the new NICE guideline sort of gives a backdoor enterence to this, that because the NICE guide also says clearly...
I'm glad the guideline is explicit against the deconditioning / false illness beliefs theory. (I was very releived to read this, and enjoyed...
I'm not part of MEAction, i'm too ill. But ME Action have had a huge impact in Scotland in terms of getting the parliament to take it more...
Here's my annotated version of what @DigitalDrifter posted... it's not perfect, there will be spelling errors, but it is 2am in the morning where...
I'm sorry i cant read the long posts. My worry is that all the names mean so many different things to different people. CFS in UK means something...
@Dolphin CNN have a youtube page. I don't think you can watch whole shows but they have lots of long (10mins ish) clips, including ones by Cuomo....
In Scotland NICE is less important and not something Doctors have to follow (Although many do, as it's often quite helpful for other illnesses.)...
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