This is, as far as I can see, an effort to exert some sort of pressure on NICE and their decision to pause. This is not about reopening/revising...
These are new documents, added in the past month. There are people in BACME driving for change, and there are those who are more wedded to the old...
I think this guideline will be the start of the end for 'CFS/ME'.
I think there has been a request from Dr Myhill (perhaps the Dr in Countrygirl's post), as well as a separate one from Tanya Marlow, and it's all...
Yep. But I'm pretty sure that is not Tanya Marlow writing there... It's all very confusing and it's not the right approach.
This is (clearly, to me at least) a case of crossed wires. NICE wouldn't ask for 50 stories by the end of the day! This is for NICE, not from...
NICE has just written to stakeholders explaining that the guideline has been 'paused'. I don't know what to say! I am fuming. This post has been...
That probably would have helped. I expect they've received lots of feedback from all member organisations of FME and now it's just a case of...
Can I please suggest we start a new thread for press and media for the guideline release. This thread is getting very long and much of the content...
As I noted somewhere in this thread, we submitted lots of feedback on the website. It needs lots of work. We didn't know the test site was going...
Google "does metabolism slow down with age" Then look at the results, as well as the sample answers from the "People Also Ask" section. Every...
Many people believe metabolism ramps up in teenage years, peaks in 20s, and declines from 30s, as has been taught in the past. This study...
The actual paper is here (again, paywalled): https://science.sciencemag.org/content/373/6556/808
It's certainly overpriced in the circumstances you describe, but not—as in my case—if the speed guarantee is 32Mb, which is slightly higher than...
Ah sorry to hear that. Perhaps worth trying again as maybe they were having teething problems? No, I am with NowTV broadband (until tomorrow).
https://www.bt.com/exp/broadband/home-essentials I've just moved to this. It looks like the speeds will be no less than my current plan. Who can...
There are people posting on Facebook—under an ME Association post about this video—saying they have seen this physio and were very happy with her...
Coincidentally, I have just posted a blog on this very topic. See thread here:...
https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I have written more about the emerging theme of a 'dysregulation model of ME/CFS' from...
Was there a decision about who could discuss the embargoed final guideline with regards to S4ME's position as a stakeholder?
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