I'd love to be able to access acupuncture and massage on the NHS. It would be a thousand times better than cbt or get! If they can't treat us,...
30 minutes?? How do these patients manage it?
It's the definition of ME that worries me. If we continue with yet more studies with 'fatigued' patients who do not have clearly defined ME, then...
Absolutely. I don't believe the CMRC's decision is due to a change of heart, it's more necessity. The patients were making it very difficult to...
I would expect said biomedical researchers to know enough to completely understand our reservations, knowing how badly pwme have been served in...
Thanks Simon. I presume this list didn't have to be ok'd by Simon Wessley this time? ;)
Best quote of the day in response to Crawley leaving on AfME fb page Dawn Ward ''Bye bye Crawley, hopefully off to do 10% extra every week until...
Well that was so easy even I could do it!
Well, they do have male pattern baldness to fund :banghead:
Well done Gary, twice in one week! If you wanted an in-depth history to peruse at any time, this article is about the best ever written,...
I've needed at least 9 hrs sleep since I got ME just to function at all. I do take sleep meds though, without them I wake up after 3-4hrs. PEM...
They are no better than Nazis. I am so ashamed of my country.
Sometimes people just need to vent, there is so much hurt and pent up anger from the medical neglect and injustice. You will be shocked and...
A very warm welcome to S4ME @Gary Burgess it's great to have you here with us :) I thought the show was great, though a pity that the question...
Of course :hug:
Oh wow, that's fantastic news Liv! :woot: :hug: :woot: Well we'll definitely be there, the location sounds wonderful. I have just listened to...
I'm registered there and had to have initial appointment with a GP from their partner surgery to get prescriptions. I don't think he believes ME...
I wonder how many of us avoid talking about ME with GP's and consultants?
Wow, wasn't Carol fantastic!
And Crawley calls it post exertional fatigue :banghead:
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