Yes! I also get the burning, electric like pain in spine, it feels like the spine is inflamed and pulsating. Also forgot Shaking, arms...
I also get all these symptoms, not so much the GI issues though since going gluten and dairy free. I will add a couple more Inability to stand...
Totally agree, we need to mobilize an army of patients, just a few will make little impact, but if thousands of us did it we might just bring...
Copy and paste this into an email and send to your GP. Obviously you need tho change the bits I've written about myself ;) [IMG] Dear (your MP),...
see post #74 Robin Callender Smith about 5 months ago Congratulations to Valerie - and all the other ME advocates and ME sufferers - whose...
Basically they need to accept the following points 1. Both CBT and GET are ineffective as treatments for ME and can harm. 2. There are no...
Reviewing a wide range of evidence is pointless until they understand and accept that ME is a physical illness as per the IOM report. It cannot...
A very warm welcome to S4ME @Jonas Blomberg, it's good to have you on board :)
I'm the same if my thyroid level gets too low, I get extreme tiredness to the point of sleeping up to 15 hours a day, and then having to force...
I do think that #ME Action do speak for all of us, and most if not all other groups/charities support what they are doing. If ME Action wanted to...
Lol, I thought that myself but managed to hold back :laugh:
You must be so stressed Liv :hug: I really hope you get a nice assessor and it isn't too stressful or traumatic . I will be thinking of you and...
I've only just come across this as it appeared on MEA twitter feed. I wonder what this means for someone with aortic regurgitation? :unsure:...
Charles Shepherd posted this response on fb when asked about a recording or transcript. Charles Shepherd At this stage I'm not sure if there...
@ScottTriGuy and @Kalliope brilliant letters from both of you!
Following on from what @Alvin said, a good osteopath can work wonders too. I was referred to one last year on the NHS I was shocked lol, he worked...
Maybe you need a temporary fix for this such as diazepam, not a good drug I know, but excellent to relax muscle spasm in the short term? Maybe...
When will they ever realize that we don't need to learn to set targets or how to increase activity, we need to learn how to bloody rest! I fully...
Dr Weir would be fantastic, as would Nigel Speight. Dr Weir is private though and they are both probably far too busy defending patients across...
Is there any chance the Nice committee will see this? This study perfectly describes patients lived experience. Everyone in health care ought to...
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