1.5 Assessment and care planning by a specialist ME/CFS team p.11 line 13: There should be a clear statement in section 1.5 that people with...
1.4 Diagnosis ————————————————- 1.4.1 p.11 line 3: We suggest a list of common conditions that should be excluded as part of the diagnostic...
1.3 Advice for people with suspected ME/CFS 1.3.1 p.10 lines 15-21: The advice to people with suspected ME/CFS to rest and not to use more...
1.2 Suspecting ME/CFS --------------------- 1.2.1 ——————— 1.2.2: p. 8 lines 5-9: We suggest addition of a bullet point in 1.2.2 stating the...
1.1.6 - 1.1.11 ------------------- 1.1.6 ------------------- 1.1.7 ------------------- Awareness of severe and very severe ME/CFS and its...
Section 1.1 Principles of care for people with ME/CFS 1.1 - 1.5 1.1.1 p.4 line 5: The word ‘complex’ should be deleted. The underlying...
General We have made comprehensive and detailed suggestions for changes to the draft guideline and we are only one of many stakeholders making a...
General Medical care models and the use of evidence. NICE guidance for the management of conditions for which there is no effective treatment...
General Introduction to our submission Our submission is based on extensive discussions of the guideline by members of a science-focused ME/CFS...
Here is the Science for ME submission to NICE (The UK National Institute for Health and Care Excellence) consultation on its draft guideline:...
Thanks to everyone who participated in the discussion threads on the NICE Guideline draft for your thoughtful comments. We will be closing those...
A reminder to anyone interested in adding comments to the individual discussion threads about each section of the guideline - the threads will be...
From the committee news forum: Dear members, The forum is working collectively to develop a submission on the NICE ME/CFS Guideline draft. We...
Trish here. I have been drafting the summary for the weekly News in Brief and thought this list of links to documents and responses so far might...
This post will link threads for members to discuss sections of the guideline in preparation for the S4ME submission. Section 1.1 Principles of...
Here's the link to the draft guideline and associated documents: Draft guideline document...
Earlier this week we sent this letter to Dr Karla Soares-Weiser, the new editor of Cochrane, who in this article,...
Added October 2021 A member noted in September 2019: "Sometimes when I'm in a crash (either due to overexertion, or to a different, unidentified...
We had a further response on this and I think its also useful to look at the response we had to taking the first letter to the NICE complaints...
We took this to a stage 2 review and received a response which basically says they followed due process which I think is all their complaints...
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