Interesting. I’m similar with sound sensitivity currently, but I’ve also got PEM. I have the awful coat hanger pain and very painful hips.
Exactly. He is entirely wrong in his theories about me, too! I was affected by food poisoning and/or virus I was bed bound a few days, then weak...
Good grief! Sounds like he’s of the magical thinking LP ilk. I find it disturbing and disappointing. He has a fair few assumptions going on there!
Ah, yes ... possibly. What do you think @Trish
I’m bad with tree pollen. Not noticed animal hair. Yes, high pollen always worsens ME. I have had mild skin reactions in the past. I can’t...
Thanks, that would be good to try. I’ll have a look.
@wigglethemouse thanks - that looks similar to Prevalin
@Mij that's interesting, yes. We’ve had high pollen and there’s a lot of dust.
Thanks @Mij I’ll check your thread. It’s been high here too.
Hi @Sarah94 Yeah, I’ve tried Prevalin - it’s helpful to a certain point. We don’t dry clothes outside, windows kept closed when pollen rises and...
Is anyone else badly affected by pollen? My energy issues and fatigue and migraines are all exacerbated by pollen. Really bad. I can’t use...
I’ve sent my experiences in to carol and ME Association.
I find this very interesting. Clearly showing it’s not deconditioning.
Yes. I get the burning pain too and need to rest till it eases. Arms and legs get it.
I suffer from reduced stamina. It’s like there’s nothing in the tank .. low energy and very little by way of stamina .. both physically and...
Thanks @Brian Hughes
Agreed. Thank you @JaimeS :)
Agreed. It has been emotionally draining, upsetting and hurtful. Some excellent responses from patients but complete silence from charities,...
I’d have expected some presence & support from our charities. I’ve been really affected by this weeks attacks in the media. I feel that patients...
That’s very interesting! I have great difficulty being outside. I have Angina too so that is part of it, but I get spaced out, derealization,...
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