I still hope that the something in the blood keeps being true, but i got a cycle of 7 plasma exchanges 2 months ago. Did absolutely nothing for...
Still waiting for SS31/elamipretide to be market ready. The phase 3 trail for Primary Mitochondrial Myopathy...
Its proven that there is disturbance in the autonomic nerve system. Everyone who is still drinking coffee, coke, alcohol, energy drinks has only...
Ppl need to drink water to live, who would have known without a study.
Interesting. A lot of ppl with Cfs have a bad skin perfusion and are very pale. Seems like its not just a centralization from the body, more like...
Well, if its true, no one should ever recover from Cfs then. There would be no cure, no treatment. bad prospects for sure.
Mhh ok sounds pretty dubious after looking into your links. Did some ppl from the forum really try dichloracetat or Meldonium ?
@Jaybee00 oh thanks for letting me know haha. Didnt hear his name before. Was just browsing through some studies and found it an interesting read....
https://www.sciencedirect.com/science/article/pii/S0306987719309831
@Hutan that sounds absolutely plausible to me. Maybe also want to look into this. OI and POTS after vaccination. [MEDIA]
So i looked up a lot of studies again for graves disease and rituximab. For me it still seems to only help with the graves opthalmopathy and not...
@Hutan maybe you want to watch this. [MEDIA]
@Hutan https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5541141/ i used this method. Its a test for GPCR autoantibodies like seen in CFS. Because of...
@Jonathan Edwards Thanks for the response. Im not a native english speaker so please forgive me any mistakes i maybe make in showing my thoughts...
I talked with Dr. Scheibenbogen about the study. It also was just a proof of concept. 10 ppl got an immunadsorption with no further follow up...
The negativ Rituximab trial doesnt rule out an autoimmune cause of ME/CFS at all. There a different types of antibody producing B-cells. Varying...
Well i have a positiv tilt table and also these antibodies. Getting a plasma exchange next week. So i can tell you pretty soon how imported that...
Thanks a lot for the answer. Dont know what to expect but will definitely give it a try. I was tested positiv for ß2, M2 and nociceptin receptor...
Heyho, short introduction from my side, im from germany ( english is not my native language so please overlook possible grammar mistakes :) I got...
checks out for me tbh. they found ß2 autoantibodies in asthma. And im a strong believer in autoantibodies still for cfs/fibro/crps
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