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  1. Ash
    Post

    Jo Daniels (on CBT, ME/CFS and Long Covid)

    Not-so-Dear researchers, “at least in part” Really? Show us your evidence? yours patiently All of us.
    Post by: Ash, Dec 23, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Ash
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Yes @Tia this is upsetting. So many potential treatments, but without rigorous testing we don’t know who or whether they help.
    Post by: Ash, Dec 23, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  3. Ash
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://www.itv.com/news/meridian/2021-12-21/long-covid-has-cost-me-6000-and-left-me-close-to-taking-my-own-life
    Post by: Ash, Dec 23, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  4. Ash
    Post

    Gary Burgess - The ME show, and updates about Gary's health.

    Dear Gary & Alan my warmest Christmas messages to you both!...
    Post by: Ash, Dec 23, 2021 in forum: General ME/CFS news
  5. Ash
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    That is why I doubt that many of those Drs out there actually believe the diagnosis they give out. I think it’s very often a power move. Just...
    Post by: Ash, Dec 23, 2021 in forum: Other health news and research
  6. Ash
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    It is so cruel and unjust. The power of one man’s prejudice to mark you for a life of care denied. It doesn’t matter if you were all the labels...
    Post by: Ash, Dec 23, 2021 in forum: Other health news and research
  7. Ash
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    :emoji_bouquet: That is absolutely tragic. Her last months spent suffering awful pain and being abused by people who’s job it was to offer care....
    Post by: Ash, Dec 23, 2021 in forum: Other health news and research
  8. Ash
    Post

    Diana And Alex Klurfeld Launch New Awareness Campaign to Include Orphan Diseases (With Klurfeld Cares)

    I haven’t looked at this one. But I have a pretty firm policy not to look at stuff named after founders by themselves :rolleyes::rolleyes: So I am...
    Post by: Ash, Dec 22, 2021 in forum: USA clinics and doctors
  9. Ash
    Post

    Diana And Alex Klurfeld Launch New Awareness Campaign to Include Orphan Diseases (With Klurfeld Cares)

    Surprisingly they cover a variety of important under reported stuff on there. They just covered a human rights charity that is bringing a case...
    Post by: Ash, Dec 22, 2021 in forum: USA clinics and doctors
  10. Ash
    Post

    Esther Crawley

    This is the :heart: of the matter
    Post by: Ash, Dec 21, 2021 in forum: UK clinics and doctors
  11. Ash
    Post

    Chronic exposure to polluted urban air aggravates myocardial infarction by impaired cardiac mitochondrial function and dynamics, 2021, Marchini et al

    I do think it’s interesting that we people in many countries, can be convinced to allow the very air we breathe to be poisoned and still we...
    Post by: Ash, Dec 16, 2021 in forum: Other health news and research
  12. Ash
    Post

    Chronic exposure to polluted urban air aggravates myocardial infarction by impaired cardiac mitochondrial function and dynamics, 2021, Marchini et al

    Yeah it’s the whole let’s make sure the polluters don’t pay, isn’t it? Infectious disease? Well should be more careful. Need treatment cause you...
    Post by: Ash, Dec 16, 2021 in forum: Other health news and research
  13. Ash
    Post

    Chronic exposure to polluted urban air aggravates myocardial infarction by impaired cardiac mitochondrial function and dynamics, 2021, Marchini et al

    Pollution :skull: through many routes scares me a lot…
    Post by: Ash, Dec 16, 2021 in forum: Other health news and research
  14. Ash
    Post

    BPS attempts at psychologizing Long Covid

    :emoji_imp:
    Post by: Ash, Dec 15, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Ash
    Post

    BPS attempts at psychologizing Long Covid

    Do you have a screen shot of the deleted tweet?
    Post by: Ash, Dec 15, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Ash
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Sounds great from the chapter headings. Thanks @Andy
    Post by: Ash, Dec 15, 2021 in forum: Advocacy Projects and Campaigns
  17. Ash
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I don’t know the of details the exact conflicts of motivation behind large ME charities. I expect these are many a twist and turn. The broader...
    Post by: Ash, Dec 15, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  18. Ash
    Post

    The maintained attention assessment in patients affected by [ME/CFS]: a reliable biomarker?, Murga et al, 2021

    I have overstretched myself reading or attempting to forum posts in recent months. Started with NICE stuff and relatedly looking at BPS up close...
    Post by: Ash, Dec 15, 2021 in forum: ME/CFS research
  19. Ash
    Post

    Article Express: ‘I lost half my blood’: Woman recalls diagnosis of ‘mystery illness’ - it affects millions

    Thanks all!
    Post by: Ash, Dec 14, 2021 in forum: General ME/CFS news
  20. Ash
    Post

    Article Express: ‘I lost half my blood’: Woman recalls diagnosis of ‘mystery illness’ - it affects millions

    I am too I’ll to read this but why and how, did she “lose half her blood” ?
    Post by: Ash, Dec 14, 2021 in forum: General ME/CFS news
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