oh no that's disappointing. I'm now reading your post, but to me it reads as a plea to say could you now persuade those Royal Colleges who...
That’s one to flag to the ME charities I don’t mean this to sound as it does as I don’t think they are terrible - just wonder what they are...
Does anyone know if Pete gladwells service was called ‘ME service’ and has now been turned into ‘fatigue service’ and when that happened and what...
Thanks for the extra coding information. I’ve just come back to this one and I think it’s so important and I’m fascinated at trying to unpick...
Yes there are indications of selective descriptions of their sample ie wheedling ave age 88 96 patients in six months claims this accounted for...
This smells strange to me although I guess it depends how they count one fir things like x-rays? I’m imagining most were in hospital anyway. And...
The thing that feels like a change recently is when it’s not just 3 callers you can’t put it down to maybe just being ‘them’ or ‘unusual’. The...
It ticks someone’s box but doesn’t really match the condition I can see how a misled teacher might think it’d be nice for themselves to spend...
When I think of the risk of OnlY using actimeters for measuring eg PEM and of course the issue being we haven’t really got a good way of...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9229674/ I did a Google of these exoskeleton things and it’s a whole new world I think you might...
So really the message from them should have been more general to ‘include’ the new in being persistent and methodical at looking at the how to use...
That’s a classic example of a treatment measure where confirmation bias will be implicit in measures you can’t complete the training if your...
Wow the word/phrase ‘unlearn’ has been used That is so significant I tend to talk of the need for ‘deprogramming’ eg for behaviourists,...
One caller used example that a nurse or HCA poured water over her when she was in hospital because they didn’t believe in the illness’
Ricky gervais joke being mentioned as that sort of thing contributing to the stigma
That’s my point - it’s ’this Area of physio’ the one that’s decided to focus on behavioural and fatigue is there a role for that - and I think...
Is there even really a job for this area of physio anymore in me/cfs anyway. even if you go with the ‘make sure people don’t overdo it’ or study...
100% agree not great today but there’s something in reading your post where I thought that’s it! That’s what we need a page specifically on I’m...
Me too. I darent as I’d get eaten alive or might say something slightly wrong due to nature of talking when exhausted huge admiration to those...
agree pacing needs to be dropped and ambiguity needs to also be stomped on when it’s deliberately introduced by others ‘pretending it’s by...
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