Thanks for posting. This seems a good development given she was involved in the parliamentary debates on ME/CFS too wasn't she? I've read the...
Can you pass on my thanks to Karen. I've one of those weeks, including today, so it's a short reply. But a quick read through am highly...
Nudge
I don’t think it should be seen as an unpopular view. I suspect that most of those with experience are worried this is naive re some of these...
Agreed. I'm worried that I'm seeing people who would need to change their model on here and wondering whether they were potentially signing...
I like this sort of thing, only if to remind people that sometimes you do need to step back and realise a lot you think you know as sure is...
OK now I'm getting into theoretical land but a test that is somewhat diagnostic would be interesting because we could look at what other diseases...
Agreed. I think there is a massive line between having it as a defined discussion for other things vs allowing these things to sneak in using the...
There is one editor for this special issue it seems: Prof. Dr. Cleofas Rodriguez-Blanco Guest Editor Physiotherapy Department, Faculty of...
Moved from above post for length. This is in the title part: So whilst these things on their own perhaps can't be defined as harmful - because...
I'd like to know more about why people are doing this sort of thing trying to push these things onto people who have serious illness. I know that...
Moved post I've just found the following: Info-Guide-2-Care-and-support-planning-for-personal-health-budgets.pdf (peoplehub.org.uk) there might...
If they use this to diagnose then we have a real issue. Because it is a great way given the PEM description of filling the ME/CFS category with...
they can't be that dumb, and neither are the MEA - this is what/how the illness can 'exist' that is being put down here. It is really serious...
and things that just happen to be on the list of what they want to deliver claims to cover..
It feels like a way to end up justifying the PPS 'cos it's all caused by the mind they get random symptoms' clinics and 'fatigue, manage your...
There is clearly a problem - which should have been fixed - that rather than like all other medical conditions things making sure they fit for and...
This set of questions is very important because it is the cardinal symptom - the one bit the 'new' is supposed to be wholly rejigging everything...
There is also the issue of what does all of this matter if really you need to know if people are better, worse, same/similar and then probe on...
Hoorah! Precisely, thank you for saying that. And of course as we all know you can stitch up these tests by making people do a few of these and...
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