i think the cpet more significant than that and if it had been a reliable option then me doing that whilst moderate would have saved me being out...
And surely the comparison before you make those kinds of recommendations is to check that the disability level isn’t being made worse by the...
So just in case they are one of the misdiagnosed or the coercion to keep saying you feel well (you are in that need of hope) for how long? vs...
My goodness when you think about what this did regarding coercion into harm. do we think they were aware about the significance of that one...
Ps when we think about what clinics could actually be doing instead of all the pseudo anti psych stuff they’ve padded their documents out with …...
To feel that you don’t disappear when you get more ill , like the more ill something makes you the better for the person who did it because ‘noone...
It’s a number of catch 22s there for me. I’m rarely able to leave bed nevermind house but have medical appointments I have to attend a lot...
:bawling: So this is research done on people who are well and definitely not ill with any of the things this is supposed to inform how insulting...
I agree. But do make the point that in Uk ulcer treatment or people who are young and get barn door ulcer symptoms are seemingly pushed down a...
Spot on
Agree on this. I think demonstrating the full cycle of PEM and nailing if possible the link to deterioration is important
I’m not 100% sure. I think those who do that to us just reach gif that one as stage one in sophism it doesn’t mean if you fix it they will shut...
:hug: not looked yet but thanks for heads up I now feel like when you don’t know whether to peer between the finger of your hands you put over...
Yes I always assumed that was the mindset of medicine and that they’d be curious to hear about my careful observations when I was ill etc coming...
Thanks Hutan I thought it made sense but to wade in as I might have missed these being discussed elsewhere. I’d be intrigued given the what do...
I was that latter group I would have thought when I’ve been less unwell. I had to live a life of PEM and rolling PEM and was firmly moderate but...
If you break your leg then how it was broken normally isn’t the main lead to how to fix the leg ie treatment same for any other illness....
So frustrating or maybe interesting if we had more detail on the patients and what they’d done in the lead up eg to see severity and get a sense...
The thing is if they have some funding or sponsorship from somewhere whether it’s full time or just coaches of equipment.. well we all know how...
Is this the full / official list? I don’t see the Yorkshire fatigue clinic or the George Eliot Nuneaton clinic I was interested to look up both...
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