It was put with these people 'to develop' and 'deliver' back then because at the time clearly the aim was to develop a psychosomatic guideline I...
Another weird flaw of the pain catastrophising ‘move’ is that in its proper definition some who has the proper catastrophising (subset of...
That last one really helps I don’t get how it didn’t move forward and we are where we are because people were looking for and aware of the issue...
Great you are doing this. It’s a yes, yes to this important persistent problem being flagged. And for me/cfs never more important as we will have...
:rofl:
I like the idea of inputting into/helping with advice on the actual method for making sure input ‘heard’ is properly representative and qualified...
Creepy they are right wth another one for the journos looking for scandals - although I think it would be better with this to connect it with...
To be fair that PROMS survey is so long that if they had to print it off a few times for proof checking and spellcheck it would cost a fortune in...
Or if you do see then two years on tell yourself ‘bless ‘em they must have metaphorically fallen off the wagon and relapsed’ and in their mind...
Agree - I think , and I don’t know what it is (not just a campaign ) , getting it understood that the methodology issues underlying these areas...
I know but then I remember that it’s 130 people in BACME but all mightnt have joined because they agree. and there are a few big kingdoms who’ve...
And on that note, and the point in @Trish ’s brilliant letter to action fir ME which flagged gladwell using patients from his own clinic for his...
You can’t have 30/76 ‘were pressured’ and 34 were harmed and suggest the same entity and managers can be left in charge just need to be chatted...
THIS is what needs to be the starting point for implementation discussions NOT pwme or who are representing them being persuaded by BACME that...
Yes I used slack in 2007 ish when it mainly the messenger type thing. So I know what your referring to I think (being aware that what I used then...
Thank you so much for your replies. You remind us how much we go through with your last line, because it sounds like a lot you've weathered. I'm...
You mean like share documents with edit? Or is there an actual forum feature?
yes on the it is interesting to understand more about these things and the different 'forces' in the charities that might pull one way or another....
NO I agree you are right to be cautious, good to hear a line about new ways forward involving seeking input though - but yes, too true there is a...
I can see the thinking, but imagining a list of pros and cons (for different stakeholders eg those doing the forum vs us vs researchers), and...
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