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  1. It's M.E. Linda
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I will try at some point. Currently I am struggling to even follow my saved threads on the forum - in a generational ‘sandwich’ position as a...
    Post by: It's M.E. Linda, Sep 29, 2024 in forum: General ME/CFS news
  2. It's M.E. Linda
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    If you mean Commissioners who look into the services to be provided by each individual ICB (Integrated Care Board) (in England) or Health Board...
    Post by: It's M.E. Linda, Sep 28, 2024 in forum: General ME/CFS news
  3. It's M.E. Linda
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    it is 14:00 Friday 9 August, per Sarah Boothby’s tweet [MEDIA] “…GP Surgery and both divorced parents). HMC is taking time to reflect on the...
    Post by: It's M.E. Linda, Aug 8, 2024 in forum: General ME/CFS news
  4. It's M.E. Linda
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    perhaps also @MEMarge might know? Only from having re-read Bob’s experiences today :emoji_disappointed_relieved:...
    Post by: It's M.E. Linda, Aug 8, 2024 in forum: General ME/CFS news
  5. It's M.E. Linda
    Post

    Updates from the UK ME/CFS Biobank / CureME team

    U.K. ME/CFS Biobank has always held a supply of ME/CFS, MS and Healthy Controls bloods to supply for various studies (just from my knowledge as a...
    Post by: It's M.E. Linda, Jan 16, 2024 in forum: ME/CFS research news
  6. It's M.E. Linda
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Many thanks for your response @Andy I asked both members to use the “contact us” details to check their applications with the team.
    Post by: It's M.E. Linda, Nov 5, 2023 in forum: Recruitment into current ME/CFS research studies
  7. It's M.E. Linda
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    @Andy Is there an upper age limit please? Everything I’ve seen just says ‘over 16’. A member in my local group is implying that she wasn’t...
    Post by: It's M.E. Linda, Nov 2, 2023 in forum: Recruitment into current ME/CFS research studies
  8. It's M.E. Linda
    Post

    Do the findings in LC suggest two distinct phases for ME/CFS onset?

    In my n=1 experience, I can date both my infections to the day 25 June 2001: Unknown virus caused a severe reaction whilst on my lunch break at...
    Post by: It's M.E. Linda, Aug 24, 2023 in forum: Possible causes and predisposing factor discussion
  9. It's M.E. Linda
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    Although the planned discussion on Gender Bias did not take place today, Sky News Breakfast did show Sky’s Science and Technology reporter Tom...
    Post by: It's M.E. Linda, Aug 24, 2023 in forum: ME/CFS research
  10. It's M.E. Linda
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    A number of us on twitter/X are comparing notes as we need hard copies to even start reading the consultation. We emailed the ME/CFS unit as above...
    Post by: It's M.E. Linda, Aug 22, 2023 in forum: News from organisations
  11. It's M.E. Linda
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Thread Reader of Elisa’s tweets: https://threadreaderapp.com/thread/1687811520850182144.html
    Post by: It's M.E. Linda, Aug 6, 2023 in forum: General ME/CFS news
  12. It's M.E. Linda
    Post

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    Thanks both, I have just been acting as an go-between to try to get this deleted. The Trust has found no live content linked to it so the PDF is...
    Post by: It's M.E. Linda, Jun 8, 2023 in forum: UK clinics and doctors
  13. It's M.E. Linda
    Post

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    @Sly Saint Are you able to provide me with the website link to the “google treatment for ME” that you used, where you located this file please?...
    Post by: It's M.E. Linda, Jun 8, 2023 in forum: UK clinics and doctors
  14. It's M.E. Linda
    Post

    Dentistry; dental treatment

    If you are in the U.K., check out what domiciliary dental care there is available in your region? I am aware of a couple of friends who have used...
    Post by: It's M.E. Linda, May 26, 2023 in forum: Home adaptations, mobility and personal care
  15. It's M.E. Linda
    Post

    Long Covid in the media and social media 2023

    Hope this Token works: https://www.thetimes.co.uk/article/e36f0862-f4cc-11ed-99c7-9412839daee7?shareToken=6482011779dc1135989a6d20c292f7b7
    Post by: It's M.E. Linda, May 18, 2023 in forum: Long Covid news
  16. It's M.E. Linda
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    People with ME are working hard to ensure the patient’s voice and the reality of the lived experience is heard in Bristol…..
    Post by: It's M.E. Linda, May 9, 2023 in forum: ME/CFS research news
  17. It's M.E. Linda
    Post

    Cerebellar Excitability Regulates Physical Fatigue Perception, 2023, Casamento-Moran et al

    Begs the question: Why didn’t the study just use a Hand Grip strength measurement? That would have provided some physical evidence of a decline...
    Post by: It's M.E. Linda, May 5, 2023 in forum: 'Conditions related to ME/CFS' news and research
  18. It's M.E. Linda
    Post

    UK: Sheffield Children’s Hospital, NHS, CFS/ME clinic

    Email sent to Russell today, so the MEA can add Sheffield onto their watch list.
    Post by: It's M.E. Linda, Apr 17, 2023 in forum: UK clinics and doctors
  19. It's M.E. Linda
    Post

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    I have emailed and asked for it to be deleted as it is a pre NG206 document.
    Post by: It's M.E. Linda, Apr 15, 2023 in forum: UK clinics and doctors
  20. It's M.E. Linda
    Post

    UK: Sheffield Children’s Hospital, NHS, CFS/ME clinic

    I have emailed a link to this thread to a trustee at Sheffield ME & Fibromyalgia Group, to bring this to their attention. I am aware that they are...
    Post by: It's M.E. Linda, Apr 15, 2023 in forum: UK clinics and doctors
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