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  1. It's M.E. Linda
    Post

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    From Action for ME:...
    Post by: It's M.E. Linda, Oct 21, 2020 in forum: General ME/CFS news
  2. It's M.E. Linda
    Post

    ME/CFS European Comparison Survey - SmartSurvey. Professor Derek Pheby 2020

    I replied, along the lines of: ‘Blood tests only - no idea, but at a very rough guess, 20 over 19 years?’ Also. One Q did not allow a N/A answer...
    Post by: It's M.E. Linda, Oct 20, 2020 in forum: General ME/CFS news
  3. It's M.E. Linda
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Just went to read posts and Dr Daniel’s twitter account is now private. I fear that I may not be accepted if I ask to follow the account.
    Post by: It's M.E. Linda, Oct 8, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  4. It's M.E. Linda
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Thank you all for your comments. Think we are all a bit ‘edgy’ about the proposals coming out. Better rest beforehand, to be ready on 10 Nov to...
    Post by: It's M.E. Linda, Oct 7, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  5. It's M.E. Linda
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Spotted in 9 September 2020 minutes from Forward-ME:...
    Post by: It's M.E. Linda, Oct 7, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  6. It's M.E. Linda
    Post

    UK: Online open discussion: "Social Security for All - Agreeing a Way Forward", 7th October 2020

    So sorry, I will ask at the meeting if the results can be shared, when they have collated the information.
    Post by: It's M.E. Linda, Oct 1, 2020 in forum: Advocacy Projects and Campaigns
  7. It's M.E. Linda
    Post

    UK: Online open discussion: "Social Security for All - Agreeing a Way Forward", 7th October 2020

    Organiser has told me this evening that there is one place available @Sasha if you can try again?
    Post by: It's M.E. Linda, Sep 30, 2020 in forum: Advocacy Projects and Campaigns
  8. It's M.E. Linda
    Post

    Article: Shame, Stigma and “Unexplained” Symptoms

    A later paragraph within the link (my bolding): Excellent!! ETA spelling/tidy up
    Post by: It's M.E. Linda, Sep 30, 2020 in forum: General ME/CFS news
  9. It's M.E. Linda
    Post

    Post Covid-19 Syndrome naming

    Yet again, THANK YOU @Dx Revision Watch , for watching out for all these updates, and keeping an eye out for us all. As I have said before, the...
    Post by: It's M.E. Linda, Sep 30, 2020 in forum: Disease coding
  10. It's M.E. Linda
    Post

    UK: Online open discussion: "Social Security for All - Agreeing a Way Forward", 7th October 2020

    Also registered, thanks for posting the info Andy!
    Post by: It's M.E. Linda, Sep 28, 2020 in forum: Advocacy Projects and Campaigns
  11. It's M.E. Linda
    Post

    Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath

    Like @Trish , I would say that we all experience variations of symptoms. For example, I have never experienced ‘sleep reversal’. My sleep...
    Post by: It's M.E. Linda, Sep 19, 2020 in forum: ME/CFS research news
  12. It's M.E. Linda
    Post

    Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath

    @anniekim According to people on Twitter, many have stopped logging because of them needing to continually repeat lots of info. They have asked...
    Post by: It's M.E. Linda, Sep 18, 2020 in forum: ME/CFS research news
  13. It's M.E. Linda
    Post

    BMJ letter from LongCovid doctors.

    ......or, as I read recently in a private FB group for PwME, the clinics now advise “pacing up”...... GET by another name!
    Post by: It's M.E. Linda, Sep 17, 2020 in forum: Long Covid news
  14. It's M.E. Linda
    Post

    BMJ letter from LongCovid doctors.

    My ‘first brush’ with ME/CFS/PVFS was as a post viral fatigue patient in 2001 and I was, indeed, given a PVFS diagnosis by a Consultant (!) I was...
    Post by: It's M.E. Linda, Sep 17, 2020 in forum: Long Covid news
  15. It's M.E. Linda
    Post

    BPS attempts at psychologizing Long Covid

    But they are on on your radar, and that’s good!
    Post by: It's M.E. Linda, Sep 14, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. It's M.E. Linda
    Post

    Using Plasma Autoantibodies of Central Nervous System Proteins to Distinguish Veterans with GWI from ... Controls. Abou-Donia, Klimas 2020 RETRACTED

    This makes a lot of sense. The Countess of Mar’s trigger was chemicals too, sheep dip, I believe.
    Post by: It's M.E. Linda, Sep 8, 2020 in forum: ME/CFS research
  17. It's M.E. Linda
    Post

    Psychiatrists’ Understanding and Management of Conversion Disorder: A Bi-National Survey and Comparison with Neurologists, 2020, Dent et al

    I read the words in (my) bold as Open Abcess, ;)
    Post by: It's M.E. Linda, Sep 5, 2020 in forum: Other psychosomatic news and research
  18. It's M.E. Linda
    Post

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    I sent a twitter DM to @PhysiosforME too! So happy to have some good eyes checking up on these reports/manuals/‘recovery’ aids (thank you!)
    Post by: It's M.E. Linda, Sep 4, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. It's M.E. Linda
    Post

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    I have tweeted Tymes Trust, asking if they are aware/seen this new Manual.
    Post by: It's M.E. Linda, Sep 3, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. It's M.E. Linda
    Post

    NICE Statement about graded exercise therapy in the context of COVID-19

    @PhysiosforME have now shared the letter and asks: “The letter is open access so that anyone can send on to services dealing with post-Covid...
    Post by: It's M.E. Linda, Sep 1, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
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