1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 3rd March 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 13 of 28
  1. It's M.E. Linda
    Post

    BPS attempts at psychologizing Long Covid

    both myself and @SallyC have made comments with our concerns about the suggestion in this Tweet
    Post by: It's M.E. Linda, Aug 24, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. It's M.E. Linda
    Post

    Why patients have difficulties avoiding excessive exertion

    Whenever I am ‘out late‘ (10pm?, even earlier?, just ‘been out’ anytime after 5pm), especially if I have been with others (let’s face it, I won’t...
    Post by: It's M.E. Linda, Aug 24, 2020 in forum: Post-Exertional malaise and fatigue
  3. It's M.E. Linda
    Post

    BPS attempts at psychologizing Long Covid

    Major activity this morning, so watched ‘Escape to the Country‘ (easy, house hunting UK tv programme) and had a sudden revelation (/shock) when...
    Post by: It's M.E. Linda, Aug 21, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. It's M.E. Linda
    Post

    DisabilityRights UK "Ground-breaking public consultation on proposals for a better benefits system"

    @ringding @Forestvon @JoanneS Looks like a Consultation which our group(s) should be encouraged to take part in. Please remind me if I don’t...
    Post by: It's M.E. Linda, Aug 21, 2020 in forum: General disability topics and advocacy
  5. It's M.E. Linda
    Post

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    According to this I would be within the ‘moderate’ group under the SF-36 - which I think is correct BUT steps, no way. I ‘only’ have two step...
    Post by: It's M.E. Linda, Aug 21, 2020 in forum: ME/CFS research
  6. It's M.E. Linda
    Post

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    I am constantly surprised at how many friends and colleagues describe their disease as “just Moderate”. I am not thinking well - too much stuff...
    Post by: It's M.E. Linda, Aug 20, 2020 in forum: ME/CFS research
  7. It's M.E. Linda
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    May I ask how you register please? I have logged in but couldn’t see anything, do you have to ring?
    Post by: It's M.E. Linda, Aug 17, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  8. It's M.E. Linda
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Sainsbury's delivery pass is £60 for a year (anytime delivery) but they had frozen it during Lockdown and refused new customers, the most...
    Post by: It's M.E. Linda, Aug 17, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  9. It's M.E. Linda
    Post

    UK - NHS England online tool and clinics for long Covid.

    Thank you @NelliePledge and @Sly Saint ....you are a :emoji_dizzy:
    Post by: It's M.E. Linda, Aug 17, 2020 in forum: Long Covid news
  10. It's M.E. Linda
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I don’t ‘like’ this post at all! During, and even since, Lockdown I have helped friends on occasions to obtain fresh produce because they live...
    Post by: It's M.E. Linda, Aug 17, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  11. It's M.E. Linda
    Post

    UK - NHS England online tool and clinics for long Covid.

    Does anyone remember the name of the member who has contact with Carol Monaghan please? I have no doubt that Forward ME, APPG, Researchers and...
    Post by: It's M.E. Linda, Aug 16, 2020 in forum: Long Covid news
  12. It's M.E. Linda
    Post

    UK - NHS England online tool and clinics for long Covid.

    Sorry for going light hearted, but I just had visions of Michael Spicer doing one of his “The Room Next Door” sketches on the bold words above. If...
    Post by: It's M.E. Linda, Aug 16, 2020 in forum: Long Covid news
  13. It's M.E. Linda
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you Suzy @Dx Revision Watch for ‘keeping an eye out for us’ and your continued expertise - it is a huge area.
    Post by: It's M.E. Linda, Jul 31, 2020 in forum: Disease coding
  14. It's M.E. Linda
    Post

    Nurses for ME

    Huge TY @Graham , I knew you would be helpful here. just today on twitter(from sharing Natalie and Josh’s new video on Hospital Admissions), I...
    Post by: It's M.E. Linda, Jul 27, 2020 in forum: News from organisations
  15. It's M.E. Linda
    Post

    e-coli infection and leaky gut

    The twitter thread all followed on from a post of Natalie and Josh’s latest video on Hospital admissions. I have tagged you @Graham on a Thread...
    Post by: It's M.E. Linda, Jul 27, 2020 in forum: Gastrointestinal and Urinary
  16. It's M.E. Linda
    Post

    Nurses for ME

    @Graham from hospital discussion.
    Post by: It's M.E. Linda, Jul 27, 2020 in forum: News from organisations
  17. It's M.E. Linda
    Post

    e-coli infection and leaky gut

    Dear Natalie @PhysiosforME Further to the current discussion on twitter, [MEDIA] I thought of @Graham (when I could remember his name,...
    Post by: It's M.E. Linda, Jul 27, 2020 in forum: Gastrointestinal and Urinary
  18. It's M.E. Linda
    Post

    BPS attempts at psychologizing Long Covid

    Yes - agree. I put my PVFS recovery down to my inability to move much, luck, caution and natural recovery: My first experience of ‘energy...
    Post by: It's M.E. Linda, Jul 23, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. It's M.E. Linda
    Post

    Cognitive Function Declines Following Orthostatic Stress in Adults With (ME/CFS), 2020, van Campen et al

    Yes. I would have to look at my notes from the time, but I was extremely thirsty, had to hold the nurse’s arm to go back to the waiting room and...
    Post by: It's M.E. Linda, Jul 20, 2020 in forum: ME/CFS research
  20. It's M.E. Linda
    Post

    Cognitive Function Declines Following Orthostatic Stress in Adults With (ME/CFS), 2020, van Campen et al

    From personal experience of a tilt table test: “Despite the (Consultant’s letter saying I "was well on leaving", my 86 yo mother had to escort me...
    Post by: It's M.E. Linda, Jul 20, 2020 in forum: ME/CFS research
Showing results 241 to 260 of 541 Next >
Search Again
Page 13 of 28