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Page 15 of 28
  1. It's M.E. Linda
    Post

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    This is a common problem too: <a href="https://www.s4me.info/threads/members-poll-orthostatic-intolerance.8980/#post-158689">Members poll -...
    Post by: It's M.E. Linda, May 16, 2020 in forum: ME/CFS research news
  2. It's M.E. Linda
    Post

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I realise that I have been ‘overdoing it’, if I try to walk the small block with husband and hound, my gait starts to “roll”. This can happen in...
    Post by: It's M.E. Linda, May 16, 2020 in forum: ME/CFS research news
  3. It's M.E. Linda
    Post

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    Have you thought of approaching UK ME/CFS Biobank for advice/thoughts for your feasibility study? They have already got the experience of...
    Post by: It's M.E. Linda, May 16, 2020 in forum: ME/CFS research news
  4. It's M.E. Linda
    Post

    A general thread on the PACE trial!

    Some good suggestions have been made on FB (:emoji_wave: :emoji_wave: ) for you.....we just have to keep on educating these MP’s/ MSP’s. It’s...
    Post by: It's M.E. Linda, May 12, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. It's M.E. Linda
    Post

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Glad it’s not just me waiting and wondering whether I have missed the news :thumbsdown: I know @Andy will tell us.......
    Post by: It's M.E. Linda, May 9, 2020 in forum: ME/CFS research news
  6. It's M.E. Linda
    Post

    #MEAction UK: "Take ME Seriously" project needs comments & signatures to send to NICE

    Published 30 April 2020: [MEDIA] https://www.meaction.net/2020/04/30/thousands-add-messages-to-6-m-long-card/
    Post by: It's M.E. Linda, May 1, 2020 in forum: Advocacy Action Alerts
  7. It's M.E. Linda
    Post

    Article in Times:GMB chief Tim Roache departs amid claims over conduct Apr 2020

    thanks @Andy , link said, unfortunately, ‘not at the moment’. But, for other non-Subscribers to Times/DT:...
    Post by: It's M.E. Linda, May 1, 2020 in forum: General ME/CFS news
  8. It's M.E. Linda
    Post

    Article in Times:GMB chief Tim Roache departs amid claims over conduct Apr 2020

    Shame both reports are in papers which require us to ‘subscribe’ for one weekly article. DT used to recognise me, now doesn’t (:emoji_spy:)...
    Post by: It's M.E. Linda, Apr 30, 2020 in forum: General ME/CFS news
  9. It's M.E. Linda
    Post

    How badly have UK proponents of Medically Unexplained Symptoms misled the medical community?

    Following, very slowly, with interest. Thank you @anniekim , OMEGA and #goodelf
    Post by: It's M.E. Linda, Apr 30, 2020 in forum: General ME/CFS news
  10. It's M.E. Linda
    Post

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    I had a similar experience as @Peter Trewhitt with yoga. The research nurse at UK ME/CFS Biobank was impressed by my muscle mass at my first...
    Post by: It's M.E. Linda, Apr 19, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. It's M.E. Linda
    Post

    Three months of bed rest induce a residual transcriptomic signature resilient to resistance exercise countermeasures, 2020, Fernandez-Gonzalo et al

    Absolutely. If I have a “late” night, I.e. to bed after 10pm have driven any time after 7pm (that doesn’t happen often!) dare to read beyond...
    Post by: It's M.E. Linda, Apr 17, 2020 in forum: Other health news and research
  12. It's M.E. Linda
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    Can anyone remember the name of the person who lives in Carol Monaghan’s constituency? Carol would be an excellent person to raise this question...
    Post by: It's M.E. Linda, Apr 9, 2020 in forum: Other psychosomatic news and research
  13. It's M.E. Linda
    Post

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Sorry - :banghead::banghead::banghead:
    Post by: It's M.E. Linda, Apr 6, 2020 in forum: UK clinics and doctors
  14. It's M.E. Linda
    Post

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Naive question here. How is NIHR independent & able to make decisions re funding for research, if it is in Partnership with a particular ‘research...
    Post by: It's M.E. Linda, Apr 6, 2020 in forum: UK clinics and doctors
  15. It's M.E. Linda
    Post

    If there was a study to follow ex-COVID-19 patients what would we want to see recorded?

    We go with ‘The Outlaws’! A friend who is a member of my local ME group and also a member of County ‘Healthwatch’, sent me the link. Usually 2...
    Post by: It's M.E. Linda, Apr 5, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  16. It's M.E. Linda
    Post

    United Kingdom: North Bristol NHS Trust: ME/CFS clinic

    Thank you, that sounds quite reasonable although 2 weeks running could be quite hard work. I only asked because the ‘group courses’ laid on at...
    Post by: It's M.E. Linda, Apr 4, 2020 in forum: UK clinics and doctors
  17. It's M.E. Linda
    Post

    United Kingdom: North Bristol NHS Trust: ME/CFS clinic

    Please may I ask @ringding how long for and how many meetings were involved in the course? From my perspective, at another clinic, in 2014. There...
    Post by: It's M.E. Linda, Apr 3, 2020 in forum: UK clinics and doctors
  18. It's M.E. Linda
    Post

    The Steph show channel 4 U.K.

    @Naomi10 @Natalie Any thoughts on who to share this with?
    Post by: It's M.E. Linda, Mar 29, 2020 in forum: General Advocacy Discussions
  19. It's M.E. Linda
    Post

    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    Public Health England: What do we mean by extremely vulnerable? People falling into this extremely vulnerable group include: Solid organ...
    Post by: It's M.E. Linda, Mar 27, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  20. It's M.E. Linda
    Post

    NHS England now lists ME (not CFS) under neurological conditions but puts it in potentially unhelpful category

    https://images.app.goo.gl/SU7jEiWVj5EBTX8k6 27.6.2016 Nursing in Practice by Keith Geraghty
    Post by: It's M.E. Linda, Mar 20, 2020 in forum: UK clinics and doctors
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