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  1. It's M.E. Linda
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    if you would be interested in being put in contact with other constituents/receive any updates re Scott Mann, please message me through Inbox and...
    Post by: It's M.E. Linda, Mar 20, 2020 in forum: News from organisations
  2. It's M.E. Linda
    Post

    NHS England now lists ME (not CFS) under neurological conditions but puts it in potentially unhelpful category

    Caroline trained Dio ( Dionysios Giotas) to assist her with house/bedbound patients and , then later, they both trained more nurses to do the...
    Post by: It's M.E. Linda, Mar 20, 2020 in forum: UK clinics and doctors
  3. It's M.E. Linda
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I think “our Guy” would be scared not to be kept informed (by APPG) .....otherwise the 4 of us - able to debate with him - would be on the War...
    Post by: It's M.E. Linda, Mar 19, 2020 in forum: News from organisations
  4. It's M.E. Linda
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Do you belong to #ME Action England SW on FB @MeSci ? If so :emoji_wave::emoji_right_facing_fist::emoji_vulcan:, or whatever we are supposed to do...
    Post by: It's M.E. Linda, Mar 19, 2020 in forum: News from organisations
  5. It's M.E. Linda
    Post

    EUROMENE - Final Conference Common strategy on research of ME/CFS will take place on 12 - 13 March, 2020 at Rīga Stradiņš University, Latvia

    Not quite met her yet but have spoken on the phone (to be ‘roped into’ another project) and had emails and she absolutely is a lovely person!! It...
    Post by: It's M.E. Linda, Mar 13, 2020 in forum: ME/CFS research news
  6. It's M.E. Linda
    Post

    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    please see:...
    Post by: It's M.E. Linda, Mar 5, 2020 in forum: Advocacy Projects and Campaigns
  7. It's M.E. Linda
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Never fear Nellie, I am very persistent!!
    Post by: It's M.E. Linda, Mar 4, 2020 in forum: News from organisations
  8. It's M.E. Linda
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I’ve received the bad news that as my MP is now a Junior minister, he is no longer allowed to be a member of any APPG. I have spoken to his...
    Post by: It's M.E. Linda, Mar 3, 2020 in forum: News from organisations
  9. It's M.E. Linda
    Post

    Sign up! Your support could help win funding for a game-changing ME/CFS study (Simon M blog)

    Thank you!
    Post by: It's M.E. Linda, Mar 2, 2020 in forum: ME/CFS research news
  10. It's M.E. Linda
    Post

    Sign up! Your support could help win funding for a game-changing ME/CFS study (Simon M blog)

    Am I being very impatient @Andy @Simon M ? Any news from MRC/NIHR?
    Post by: It's M.E. Linda, Mar 2, 2020 in forum: ME/CFS research news
  11. It's M.E. Linda
    Post

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    I particularly like Karen’s polite question, which of course he has not yet replied to: [MEDIA] :thumbup: @PhysiosforME :emoji_bouquet: ETA the tag
    Post by: It's M.E. Linda, Mar 1, 2020 in forum: General ME/CFS news
  12. It's M.E. Linda
    Post

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    @Tom Kindlon to continue discussions in this thread. The above symptoms mentioned in the study are exactly the sort of thing I experienced...
    Post by: It's M.E. Linda, Feb 11, 2020 in forum: ME/CFS research
  13. It's M.E. Linda
    Post

    POTS - definition, diagnosis and symptoms

    May I cross reference you all to this new thread please?...
    Post by: It's M.E. Linda, Feb 11, 2020 in forum: Orthostatic intolerance
  14. It's M.E. Linda
    Post

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    see also recent discussions in https://www.s4me.info/threads/pots-definition-diagnosis-and-symptoms.13522/ (Sorry - there may have been a...
    Post by: It's M.E. Linda, Feb 11, 2020 in forum: ME/CFS research
  15. It's M.E. Linda
    Post

    POTS - definition, diagnosis and symptoms

    yes, blood pressure cuff and heart rate was monitored. But, I only managed 20 mins on the table. I felt really poorly and asked to finish (was...
    Post by: It's M.E. Linda, Feb 7, 2020 in forum: Orthostatic intolerance
  16. It's M.E. Linda
    Post

    POTS - definition, diagnosis and symptoms

    Thank you. You made me have another look at the Consultant’s discharge letter (already out for another reason) - apparently “ ....dysautonomia...
    Post by: It's M.E. Linda, Feb 7, 2020 in forum: Orthostatic intolerance
  17. It's M.E. Linda
    Post

    "Microplastics:Premium teabags leak billions of particles - study"

    I’ll try not to advertise, but I moved from a tasty supermarket’s own brand Red Label to more expensive, fair trade, non plastic (I...
    Post by: It's M.E. Linda, Feb 7, 2020 in forum: Other health news and research
  18. It's M.E. Linda
    Post

    Radio prog on body's response to low oxygen levels, or ‘hypoxia’.

    BBC website gave details of only a very few programmes which do transcripts. It suggests: “Contact To contact a Radio 4 programme, to give...
    Post by: It's M.E. Linda, Feb 6, 2020 in forum: Other health news and research
  19. It's M.E. Linda
    Post

    POTS - definition, diagnosis and symptoms

    I, too, have had a Tilt Table Test which showed that I was negative for PoTS. However, I still suffered all the debilitating symptoms of some form...
    Post by: It's M.E. Linda, Feb 6, 2020 in forum: Orthostatic intolerance
  20. It's M.E. Linda
    Post

    Radio prog on body's response to low oxygen levels, or ‘hypoxia’.

    [MEDIA] ME Association have liked and RT. Hope someone will talk to Sir Peter.
    Post by: It's M.E. Linda, Feb 5, 2020 in forum: Other health news and research
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