As U.K. ME/CFS Biobank will be involved, I am sure that some sort of abbreviated version of their Participant Questionnaires would supply...
My understanding is that the NIH grant monies are paying for the two research studies (one is an extension, for a further three years, of a study...
Thank you @Andy for gathering this all in one place. As I approached my second donation as a Biobank participant, I suddenly felt the need to try...
When I attended the local ME/CFS Clinic (2014) the Clinician was a Physio. Very pleasant, very helpful, very useful (for letter writing). CBT/GET...
Congratulations @RuthT . I hope the Conference goes well for you - more #MEawareness - a new audience....
Certainly, as a starter @Simon M , I would think all current participants with the U.K. ME/CFS Biobank would be keen and willing to provide...
More interesting news from FB, from Darren Jones MP Bristol, North West (he has been a keen supporter of PwME for some time, thanks to the efforts...
No idea re Steve B, but I have quoted a previous message of mine from another thread for you to have a read. A Labour MP was grateful for helpful...
Dare I suggest that this may be because women get more uti’s than men? (deepest apologies to our lovely gentlemen on this forum!) so it really is...
Yes, I agree, @Cinders66 . My MP is still working on educating colleagues in DHSC, although he has now been moved to be a PPS (Parliamentary...
I agree with you @Dx Revision Watch, the wording of the minutes are often ambiguous. Shame Dr Karl Morten ‘of Oxford’ can’t update his NHS Trust!
I thought she would be searching for volunteers for you @Natalie . Just shout if you need anything!
@Natalie would you like the request to go on twitter (linked to U.K. ME/CFS Biobank) to seek male volunteers or ‘hold fire’ at the moment?...
I agree, Natalie and Josh are very considerate. Moreover Josh agreed to edit out all “ummmm’s”.
I hope you have been able to offer ‘feedback’ and suggestions to Karl Morten so that perhaps a smaller proposal could be made to Wellcome? Thank...
Well done @Adam pwme . I have shared via Twitter.
Can I please second this view? I couldn’t even remember the basic “ICD11” term or @Dx Revision Watch‘s name when I was trying to recall something...
Just been pondering on this (a slightly different wording, for U.K. ME/CFS Biobank questionnaires). I found it very difficult to work out. So,...
@adambeyoncelowe wanted to know what position the arm should be in. For the Biobank tests, everything is done the same way and in the same order...
The Second phase of one study started last year and includes new participants, some of whom travel to London for the appointment. As ‘walking...
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