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  1. It's M.E. Linda
    Post

    Backbench Business Committee for next Parliament debate

    I have been watching the Backbench Business Committee each Tuesday, for news of whether any House of Commons time has been allocated yet. Quote...
    Post by: It's M.E. Linda, Nov 22, 2018 in forum: General ME/CFS news
  2. It's M.E. Linda
    Post

    Reply from Nice

    :emoji_clap::emoji_clap::emoji_clap::emoji_clap::emoji_clap:@rvallee Are you on Twitter? ETA many hand clapping emojis (which may, or may not...
    Post by: It's M.E. Linda, Nov 22, 2018 in forum: General ME/CFS news
  3. It's M.E. Linda
    Post

    Blog: Stumbling Into Normality: "The Chronic Illness Inclusion Project and a Focus Group Response"

    Excellent blog. A very hard read for anyone in a similar situation so, health warning if you live alone on benefits in the U.K.
    Post by: It's M.E. Linda, Nov 22, 2018 in forum: General ME/CFS news
  4. It's M.E. Linda
    Post

    ME/CFS NICE Guideline - Safety testing of GET in PACE trial

    Sorry @Barry , I had to skip straight to your final 2 paragraphs, as suggested. Relapse (‘recovered from’ PVFS 2001) caused by Sepsis, itself...
    Post by: It's M.E. Linda, Nov 20, 2018 in forum: General ME/CFS news
  5. It's M.E. Linda
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you Suzy for keeping this updated.
    Post by: It's M.E. Linda, Nov 20, 2018 in forum: Disease coding
  6. It's M.E. Linda
    Post

    UK Parliament - Science and Technology Select Committee

    Interesting, and related thread at:...
    Post by: It's M.E. Linda, Nov 17, 2018 in forum: Advocacy Action Alerts
  7. It's M.E. Linda
    Post

    U.K. House of Commons Science committee public can propose topics by 29 Nov

    Side note: Please note that @KarenSW is still ‘desperately seeking’ constituents of Conservative MPs on this committee:...
    Post by: It's M.E. Linda, Nov 17, 2018 in forum: Advocacy Projects and Campaigns
  8. It's M.E. Linda
    Post

    U.K. House of Commons Science committee public can propose topics by 29 Nov

    @Jonathan Edwards would you please also be able to add to any submission, by commenting on the meeting when you and @dave30th met with Darren...
    Post by: It's M.E. Linda, Nov 17, 2018 in forum: Advocacy Projects and Campaigns
  9. It's M.E. Linda
    Post

    U.K. House of Commons Science committee public can propose topics by 29 Nov

    See article below 11.7.2018 by Norman Lamb when Science & Technology Committee published their report:...
    Post by: It's M.E. Linda, Nov 17, 2018 in forum: Advocacy Projects and Campaigns
  10. It's M.E. Linda
    Post

    Hand grip strength as a clinical biomarker for ME/CFS, 2018, Nacul et al

    My first appointment was last week. The hand grip test was using the hand machine three times with a pause in between each go. I felt as if my...
    Post by: It's M.E. Linda, Nov 13, 2018 in forum: ME/CFS research
  11. It's M.E. Linda
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thank you!
    Post by: It's M.E. Linda, Nov 8, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  12. It's M.E. Linda
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Where did you find this out please?! Brilliant news.
    Post by: It's M.E. Linda, Nov 8, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  13. It's M.E. Linda
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    It says U.K. in the heading and, personally I was interested the Scottish information you supplied in post #16. Perhaps it would be helpful if we...
    Post by: It's M.E. Linda, Nov 8, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. It's M.E. Linda
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    ENGLAND: Two local friends have their own experiences with the same clinic mentioned above in #20: 1) “good example” = requested a re-referral...
    Post by: It's M.E. Linda, Nov 8, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. It's M.E. Linda
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    ENGLAND: I agree with @NelliePledge about a year: Dec 2013 referred to satellite clinic of North Bristol CFS/ME clinic. Jan 2014 - Jan 2015...
    Post by: It's M.E. Linda, Nov 8, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. It's M.E. Linda
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    I would agree with @NelliePledge . About 13 months start to finish. Referred to a satellite clinic of Bristol CFS/ME Service Dec 2013. First...
    Post by: It's M.E. Linda, Nov 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. It's M.E. Linda
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    My immediately thought was the same as @Jonathan Edwards ie that U.K. folks get (excuse the horrid pun) referred for “CFS/ME treatment” once (if...
    Post by: It's M.E. Linda, Nov 5, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. It's M.E. Linda
    Post

    Backbench Business Committee for next Parliament debate

    May not agree with his politics but can’t fault his support: “Having come this far I want to see this thing through”
    Post by: It's M.E. Linda, Nov 1, 2018 in forum: General ME/CFS news
  19. It's M.E. Linda
    Post

    Backbench Business Committee for next Parliament debate

    Carol Monaghan SNP (Scottish National Party) Nicky Morgan Conservative Stephen Pound Labour (supported the former application for a debate) Kelvin...
    Post by: It's M.E. Linda, Oct 30, 2018 in forum: General ME/CFS news
  20. It's M.E. Linda
    Post

    Backbench Business Committee for next Parliament debate

    Just for clarification - Alex Chalk is my MP and was one of Carol’s supporters at the previous applications. He has been appointed as a...
    Post by: It's M.E. Linda, Oct 30, 2018 in forum: General ME/CFS news
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