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Page 24 of 28
  1. It's M.E. Linda
    Post

    Backbench Business Committee for next Parliament debate

    I have my alarm on to be watching Parliamentary TV at 14.30 today to see if Carol and supporters appear in front of the Committee! ETA: link...
    Post by: It's M.E. Linda, Oct 30, 2018 in forum: General ME/CFS news
  2. It's M.E. Linda
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Unable to link, but within the MEA post on 26.10.2018, covering the BBC Wales story, Dr Charles Shepherd said (amongst other things) in this...
    Post by: It's M.E. Linda, Oct 28, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  3. It's M.E. Linda
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Mixing up my fictional characters, I am loving the idea that @Keela Too (and @adambeyoncelowe ?) are lurking in the shadows, like the Scarlet...
    Post by: It's M.E. Linda, Oct 28, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  4. It's M.E. Linda
    Post

    Backbench Business Committee for next Parliament debate

    I understand that applications for debates need to be lodged to the Committee by a Thursday, to be heard the following Tuesday. No sign of Carol...
    Post by: It's M.E. Linda, Oct 23, 2018 in forum: General ME/CFS news
  5. It's M.E. Linda
    Post

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    @EspeMor , Sasha has raised an important point. Many PwME only have sufficient energy to follow one route of communication. Could a ‘generic’...
    Post by: It's M.E. Linda, Oct 16, 2018 in forum: Advocacy Projects and Campaigns
  6. It's M.E. Linda
    Post

    UK: Strategies for contacting your MP about PACE, NICE and a parliamentary debate.

    One thought - my understanding is that an MP is obliged to send a written reply to a constituent who has asked a question, if the letter is...
    Post by: It's M.E. Linda, Oct 15, 2018 in forum: Advocacy Projects and Campaigns
  7. It's M.E. Linda
    Post

    Children with ME, schools and the problems of FII diagnosis

    @Suffolkres that post #52 is a brilliant help. Thank goodness you have the experience and have been able to make suggestions to help Tilly through...
    Post by: It's M.E. Linda, Oct 1, 2018 in forum: Relationships and coping
  8. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    Just checked the link and no reply yet.......hopefully they are giving the question serious thought.
    Post by: It's M.E. Linda, Sep 26, 2018 in forum: General ME/CFS news
  9. It's M.E. Linda
    Post

    Searching constituents of MPs sitting on Science and Technology Committee (UK)

    https://www.parliament.uk/business/committees/committees-a-z/commons-select/health-and-social-care-committee/membership/ And some more possible...
    Post by: It's M.E. Linda, Sep 25, 2018 in forum: General ME/CFS news
  10. It's M.E. Linda
    Post

    Searching constituents of MPs sitting on Science and Technology Committee (UK)

    @MEMarge If any assistance in letter writing is required, we have been working on a “rolling, copy/paste, constantly improving” one (with added...
    Post by: It's M.E. Linda, Sep 25, 2018 in forum: General ME/CFS news
  11. It's M.E. Linda
    Thread

    Searching constituents of MPs sitting on Science and Technology Committee (UK)

    Does anyone on the forum have any of the MPs listed in the link below as their MP please?...
    Thread by: It's M.E. Linda, Sep 24, 2018, 10 replies, in forum: General ME/CFS news
  12. It's M.E. Linda
    Post

    Children with ME, schools and the problems of FII diagnosis

    @Tilly All good wishes for Friday Tina x
    Post by: It's M.E. Linda, Sep 24, 2018 in forum: Relationships and coping
  13. It's M.E. Linda
    Post

    Updates from the UK ME/CFS Biobank / CureME team

    Dio Giotas has been appointed as a Research Nurse, according to LSHTM website
    Post by: It's M.E. Linda, Sep 20, 2018 in forum: ME/CFS research news
  14. It's M.E. Linda
    Post

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    https://cureme.lshtm.ac.uk/about-us/cureme-team/ Dio Giotas is named as a Research Nurse
    Post by: It's M.E. Linda, Sep 20, 2018 in forum: Fundraising
  15. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    I have helped with letter writing (copy, paste, improve, copy....repeat) for friends in our county. The suggestion that a ‘new’ MP can discuss the...
    Post by: It's M.E. Linda, Sep 20, 2018 in forum: General ME/CFS news
  16. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    Interesting to see Parliamentary responses to the two 4 September questions were answered on 11 & 12 September (despite waffle answer) and, yet...
    Post by: It's M.E. Linda, Sep 20, 2018 in forum: General ME/CFS news
  17. It's M.E. Linda
    Post

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    Hi @EspeMor , good luck in your new post. You will find lots of useful information, discussion and feedback in these pages! Greetings from the...
    Post by: It's M.E. Linda, Sep 19, 2018 in forum: Fundraising
  18. It's M.E. Linda
    Post

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    @adambeyoncelowe are you able to help with an answer to this question please?
    Post by: It's M.E. Linda, Sep 11, 2018 in forum: Fundraising
  19. It's M.E. Linda
    Post

    Who is Simon Wessely?

    Interesting article in The Times March 25, 2006 https://www.thetimes.co.uk/article/veterans-told-there-is-no-gulf-syndrome-xs8w782p7c9 Also the...
    Post by: It's M.E. Linda, Sep 5, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    Thank you @MeSci , good to see some MP’s are quick off the mark this week. Alex Chalk newsletter this week advises: “I have been promoted by the...
    Post by: It's M.E. Linda, Sep 5, 2018 in forum: General ME/CFS news
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