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Page 26 of 28
  1. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    @MeSci , also noted the “not usual practice to ring fence funds.....” compared to our discussions in...
    Post by: It's M.E. Linda, May 23, 2018 in forum: General ME/CFS news
  2. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    Reply received and Alex notified us (3 who met him together) by email this afternoon. Answered by: Caroline Dinenage Answered on: 22 May 2018...
    Post by: It's M.E. Linda, May 22, 2018 in forum: General ME/CFS news
  3. It's M.E. Linda
    Post

    UK House of Lords/ House of Commons Questions

    @MeSci I really like all of Carol Monaghan’s questions!
    Post by: It's M.E. Linda, May 22, 2018 in forum: General ME/CFS news
  4. It's M.E. Linda
    Post

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    A quick update on what Alex Chalk (Cheltenham) has done relating to M.E. in the last few days. 1) His fortnightly newsletter (#43) dated...
    Post by: It's M.E. Linda, May 17, 2018 in forum: General ME/CFS news
  5. It's M.E. Linda
    Post

    Not ME : One of Britain’s leading universities embroiled in major research scandal

    Does this work? I had to copy & paste to a document in order to get the access issue sorted. https://1drv.ms/w/s!AgKnW-IOXzWAdq1257ZgB2GxsoM
    Post by: It's M.E. Linda, May 17, 2018 in forum: Other health news and research
  6. It's M.E. Linda
    Post

    UK: Funding doubled for brain cancer research

    Three constituents from our local support group visited Alex Chalk MP (Cons) in April - Copy from part of an email reply from the MP:- “I really...
    Post by: It's M.E. Linda, May 16, 2018 in forum: Other health news and research
  7. It's M.E. Linda
    Post

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    Thank you for reassuring me. Woke with pins and needles in my hand, now hands. Extra emotional as son goes abroad volunteering, flies tonight. A...
    Post by: It's M.E. Linda, Apr 29, 2018 in forum: Neurological/cognitive/vision
  8. It's M.E. Linda
    Post

    Gold standard to diagnose POTS / OI / NMH?

    I like to follow all OI threads. Good luck with your neurology appointment(s) - are you in the UK? Just for your information, my experience of...
    Post by: It's M.E. Linda, Apr 19, 2018 in forum: Cardiovascular and exercise physiology (CPET)
  9. It's M.E. Linda
    Post

    Orthostatic Intolerance in PwME (POTS?/NMH?) - discussion thread

    Exactly, I now have a Consultant’s report on my file which says that I have “no problem” !
    Post by: It's M.E. Linda, Apr 8, 2018 in forum: Orthostatic intolerance
  10. It's M.E. Linda
    Post

    How to involve your MP in Carol Monaghan's PACE campaign + template email

    3 of us from our local M.E. Friendship group have an appt to see our MP in a couple of weeks, following a letter we sent for us all. We are hoping...
    Post by: It's M.E. Linda, Apr 1, 2018 in forum: Advocacy Action Alerts
  11. It's M.E. Linda
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    One such quote from Prof Malcolm Hooper: “Discrediting Chronic Fatigue Syndrome A 2013 paper by Malcolm Hooper, Emeritus Professor of Medicinal...
    Post by: It's M.E. Linda, Mar 31, 2018 in forum: News from organisations
  12. It's M.E. Linda
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    I agree with you @Barry. My post was just to show that his name appears as one of the original members of the Scientific Advisory Board for SMC, I...
    Post by: It's M.E. Linda, Mar 31, 2018 in forum: News from organisations
  13. It's M.E. Linda
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    http://powerbase.info/index.php/Science_Media_Centre Contains information regarding the set up of the SMC. Ever heard of Powerbase? (Public...
    Post by: It's M.E. Linda, Mar 28, 2018 in forum: News from organisations
  14. It's M.E. Linda
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    According to http://powerbase.info/index.php/Science_Media_Centre the SMC was founded in April 2002 and SW was one of the original members of the...
    Post by: It's M.E. Linda, Mar 28, 2018 in forum: News from organisations
  15. It's M.E. Linda
    Post

    How to follow up on the Carol Monaghan debate in Westminster

    Sorry to confuse. I think Sarah attached it as possible background reading for MP’s who may not understand why we need a debate on the PACE trial.
    Post by: It's M.E. Linda, Mar 19, 2018 in forum: Advocacy Action Alerts
  16. It's M.E. Linda
    Post

    How to follow up on the Carol Monaghan debate in Westminster

    Our local M.E. group wanted to contact the MP’s in our County (5 Cons, 1 Lab). We have members from 5 of the constituencies and the first letter...
    Post by: It's M.E. Linda, Mar 19, 2018 in forum: Advocacy Action Alerts
  17. It's M.E. Linda
    Post

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Hi @Tilly Welcome. Friendly bunch here with some familiar faces!! xx
    Post by: It's M.E. Linda, Feb 14, 2018 in forum: Advocacy Projects and Campaigns
  18. It's M.E. Linda
    Post

    Government and Insurance companies - establishing the BPS model

    Will this information be given to the debate on the PACE trial? Unum > bio-psychosocial > PACE 'Malingering and Illness Deception' !!! I just...
    Post by: It's M.E. Linda, Feb 8, 2018 in forum: Work, Finances and Disability Insurance
  19. It's M.E. Linda
    Post

    Orthostatic Intolerance in PwME (POTS?/NMH?) - discussion thread

    Thank you for telling me of your experiences. Exactly. I requested the stop because I was in so much discomfort. Talk about wanting to be in...
    Post by: It's M.E. Linda, Jan 29, 2018 in forum: Orthostatic intolerance
  20. It's M.E. Linda
    Post

    Scotland: Email and/or call your SMP today, asking them to attend the Unrest screening and conversation about ME, Tuesday 30th January

    Shared as a tweet......may reach a few more
    Post by: It's M.E. Linda, Jan 27, 2018 in forum: Advocacy Action Alerts
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