I suspect that would really cause problems with Mum's legal rights. But I understand your thinking. Missing Millions, indeed. Perhaps Tymes...
Why is there not a "Really Like" button?!
Many more PwME have commented on @Tom Kindlon 's FB page today, some with similar stories of harm done to themselves or their children
2,950 and done some sharing today...... Need to get it moving faster again!
From the Stakeholders meeting of NICE:- From what I have heard the orthostatic intolerance in ME/CFS is probably mostly not POTS. That's...
Very interested in this topic of "OI in PwME" (from recent experience) but will take it away to another thread in Symptoms....... somehow...
Think NICE Comms are more than aware of our issues with GET/CBT. More and more 'talk' taking place publically and we are all trying to add our bit...
Will PM you. Excellent letter Graham, as someone whose 2 brain cells are always struggling, thank you for your time & energy in composing the letter.
I have been following the Committee for Works & Pensions "Inquiry" into the assessments, having supplied 2 pieces of evidence to them. The...
Great letter Carly. I think we would all be interested in any response you get. I will retweet above posts.
If people feel so inclined, the biobank would also be very grateful for one off or regular contributions...
UNREST, the Sundance award-winning documentary about ME, the most common disease you've never seen, is coming to Cheltenham on Monday 11 and...
Yesterday before the budget (which I ignored) the Work & Pensions Committee interviewed "claimants" in receipt of PIP and/or ESA (UK benefits),...
@Luther Blissett [SPOILER] Now I have to bookmark these instructions for future use! Thank you. Edit - Happy grin, when something works......
@Luther Blissett, I've had a look at the 'Help and how to' page but can't see how to do your little spoiler box with the comment inside . Only...
Eventually found my entry at November 08, 2017 at 04:38 PM, not brilliant but did make improvements with my 'written' one. Would love to be able...
That's it for today. Converted my doc into word (on iPad - yuck, can't cope with tech for long these days) and sent now as written evidence. Hope...
Pleased with prompt and helpful response, copy (in part):- "The forum has received a very high volume of submissions. We hope to have them all...
Written to the Work&Pensions generic email address (workpencom@parliament.uk) today, asking why my entry does not appear and offered to email it...
Just remembered to go and have a look and can't find my entry - that's "a bit annoying" when it took a lot of my effort. Nothing to do now but I...
Separate names with a comma.
