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  1. It's M.E. Linda
    Post

    Funding of ME/CFS research in the UK

    Rory Palmer still very supportive of PwME on Twitter and shared when Evelien (@Michiel Tack ) last spoke at the European Parliament (December...
    Post by: It's M.E. Linda, Mar 2, 2022 in forum: Advocacy Projects and Campaigns
  2. It's M.E. Linda
    Post

    Funding of ME/CFS research in the UK

    [NB ^^ Alex Chalk, not Jones] 1. I very much like all of @CRG ’s questions a) - d) 2. Agreed. A Bristol MP may risk censure from some...
    Post by: It's M.E. Linda, Mar 1, 2022 in forum: Advocacy Projects and Campaigns
  3. It's M.E. Linda
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Try to make some time for yourself too @Natalie ? My heart goes out to all of you in the same situation, ensuring that your offspring continue to...
    Post by: It's M.E. Linda, Mar 1, 2022 in forum: Advocacy Projects and Campaigns
  4. It's M.E. Linda
    Post

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Watch out UK members, Cambridgeshire Live published an article 24 February 2022...
    Post by: It's M.E. Linda, Feb 25, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. It's M.E. Linda
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Can you ask the authors/The Lancet for a public apology @Jonathan Edwards ?
    Post by: It's M.E. Linda, Feb 17, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  6. It's M.E. Linda
    Post

    Should PwME be medically treated as 'high-risk' Covid patients?

    In a slightly flippant response, and given your name @Fainbrog (it’s a shame we never think of a suitable response quickly enough), a quick:...
    Post by: It's M.E. Linda, Feb 17, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  7. It's M.E. Linda
    Post

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    See ME Association post (and following comments - ‘still not perfect, but, an improvement’). A complaint was made to the Express by ForwardME,...
    Post by: It's M.E. Linda, Feb 13, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. It's M.E. Linda
    Post

    United Kingdom: Independent SAGE

    :emoji_clap::emoji_clap::emoji_clap: Excellent letter, thank you @Robert 1973 Very early days on this next part, but our MP has been involved...
    Post by: It's M.E. Linda, Feb 3, 2022 in forum: Advocacy Projects and Campaigns
  9. It's M.E. Linda
    Post

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    Have you checked spam @MeSci ? Someone else found the email in there
    Post by: It's M.E. Linda, Jan 30, 2022 in forum: Petitions
  10. It's M.E. Linda
    Post

    Editorial: A research agenda for post-COVID-19 fatigue, 2022, Wessely, Knoop et al

    Denigrating acronym, yet again, as a quick check of an online dictionary confirmed my thought that the only words close to 'PIF' is 'piffle' or...
    Post by: It's M.E. Linda, Jan 30, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. It's M.E. Linda
    Post

    PHD Project: A mixed-methods investigation of the role of illness perceptions in endometriosis, 2020 - 2023

    “illness perceptions”? why use these words, just why???? :banghead: NOTE: I have never personally been affected by Endometriosis, but I know a...
    Post by: It's M.E. Linda, Jan 29, 2022 in forum: Other psychosomatic news and research
  12. It's M.E. Linda
    Post

    UK: ME Local Network

    If any other ME/Fibro groups wish to join the discussions, please email ME Local Network: melocalnetwork@gmail.com
    Post by: It's M.E. Linda, Jan 29, 2022 in forum: News from organisations
  13. It's M.E. Linda
    Post

    Editorial: A research agenda for post-COVID-19 fatigue, 2022, Wessely, Knoop et al

    Asked whether this actually has a formal medical coding yet. Hope Long Covid Community recognises the dangers. [MEDIA]
    Post by: It's M.E. Linda, Jan 29, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. It's M.E. Linda
    Post

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    @Willow my “auto fill” understood Danish better than me and added my town/city into the “By” box.
    Post by: It's M.E. Linda, Jan 26, 2022 in forum: Petitions
  15. It's M.E. Linda
    Post

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    Thank you @Anders_Vang for the back story. I thought we “had it bad” in the UK but I am so sorry to read all this. We knew it was an uphill...
    Post by: It's M.E. Linda, Jan 26, 2022 in forum: Petitions
  16. It's M.E. Linda
    Post

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    Tweeted [MEDIA]
    Post by: It's M.E. Linda, Jan 26, 2022 in forum: Petitions
  17. It's M.E. Linda
    Post

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    Signed. I found it very easy to have Danish and English translation open in 2 windows and swop between to complete my details. U.K. is...
    Post by: It's M.E. Linda, Jan 26, 2022 in forum: Petitions
  18. It's M.E. Linda
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    Like @WillowJ and @Milo I have breathing/SOB/air hunger problems. However, this is a ‘new’ symptom, started in last 2-3 years - usually involving...
    Post by: It's M.E. Linda, Jan 13, 2022 in forum: ME/CFS research
  19. It's M.E. Linda
    Post

    UK: Priority Setting Partnership for ME/CFS

    My final selection, with grateful thanks to everyone here, but especially @Andy and @lunarainbows, in helping me clarify my thoughts :)...
    Post by: It's M.E. Linda, Dec 10, 2021 in forum: Advocacy Projects and Campaigns
  20. It's M.E. Linda
    Post

    PMHA (Paediatric Mental Health Association) Webinar 14: Chronic Fatigue Syndrome 13 Dec 2021

    Cambridge group will also investigate [MEDIA]
    Post by: It's M.E. Linda, Dec 9, 2021 in forum: General ME/CFS news
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