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  1. It's M.E. Linda
    Post

    PMHA (Paediatric Mental Health Association) Webinar 14: Chronic Fatigue Syndrome 13 Dec 2021

    I have alerted Cambridge Group about this webinar via Twitter.
    Post by: It's M.E. Linda, Dec 9, 2021 in forum: General ME/CFS news
  2. It's M.E. Linda
    Post

    UK: Priority Setting Partnership for ME/CFS

    Thank you to everyone sharing their selection choices. I particularly like @lunarainbows explanation regarding her choice of Underlying...
    Post by: It's M.E. Linda, Dec 3, 2021 in forum: Advocacy Projects and Campaigns
  3. It's M.E. Linda
    Post

    EU Petition 2019 - opportunity to lobby for funding for ME research

    For any transcript writer - this provides the link to the session relating to Evelien’s petition [MEDIA]
    Post by: It's M.E. Linda, Dec 3, 2021 in forum: Petitions
  4. It's M.E. Linda
    Post

    Patient Safety Commissioner proposal - First Do No Harm IMMDSReview, 2020, Cumberlege et al

    I was very pleased to hear Lady Cumberlege questioning Lord Kamall in the HoL about the Pause by NICE. She would be an excellent ally for PwME...
    Post by: It's M.E. Linda, Dec 3, 2021 in forum: Other health news and research
  5. It's M.E. Linda
    Post

    HealthWatchUK: It is not only drugs and devices that can harm, 2021, Struthers

    I have been sharing your article for the Healthwatch Newsletter - it has been incredibly useful, thank you @Caroline Struthers
    Post by: It's M.E. Linda, Dec 2, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. It's M.E. Linda
    Post

    Patient Safety Commissioner proposal - First Do No Harm IMMDSReview, 2020, Cumberlege et al

    I have recently been sharing both of the petitions (one international, one Gov.uk) calling for a mechanism to report harms. I returned to all my...
    Post by: It's M.E. Linda, Dec 2, 2021 in forum: Other health news and research
  7. It's M.E. Linda
    Post

    Nurses for ME

    I emailed the Online “Digital Editor” on 3 November asking whether typographical errors could please be corrected. No response yet.
    Post by: It's M.E. Linda, Nov 8, 2021 in forum: News from organisations
  8. It's M.E. Linda
    Post

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    He was the former minister, so would have known more of the history.
    Post by: It's M.E. Linda, Oct 12, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  9. It's M.E. Linda
    Post

    Northern Ireland: News from Hope 4 ME & Fibro

    One amongst thousands of messages for NICEComms. But it’s the sort of thing that NICE should be funding as a very minimum, when Guidelines are...
    Post by: It's M.E. Linda, Sep 21, 2021 in forum: News from organisations
  10. It's M.E. Linda
    Post

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    I expect she is aware @Barry . Baroness Ros Scott of Needham Market is a member of Forward-ME and would be keeping her colleagues updated on any...
    Post by: It's M.E. Linda, Sep 21, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  11. It's M.E. Linda
    Post

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    Post by: It's M.E. Linda, Sep 17, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  12. It's M.E. Linda
    Post

    OMEGA AGM & Karl Morten - latest Biomedical Research into ME from Oxford, Sept 18th 2021, 2pm UK

    Found this on twitter [MEDIA]
    Post by: It's M.E. Linda, Sep 17, 2021 in forum: General ME/CFS news
  13. It's M.E. Linda
    Post

    OMEGA AGM & Karl Morten - latest Biomedical Research into ME from Oxford, Sept 18th 2021, 2pm UK

    I was going to have a listen to the presentation on Saturday first.
    Post by: It's M.E. Linda, Sep 16, 2021 in forum: General ME/CFS news
  14. It's M.E. Linda
    Post

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    Thank you all for the hard work and effort put into composing the letter :emoji_bouquet:
    Post by: It's M.E. Linda, Aug 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  15. It's M.E. Linda
    Post

    What we're not being told about ME - UnHerd (Tom Chivers)

    x 3 @Dx Revision Watch :emoji_bouquet:
    Post by: It's M.E. Linda, Aug 29, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. It's M.E. Linda
    Post

    What we're not being told about ME - UnHerd (Tom Chivers)

    Because of the current NICE Guideline (2007 :() I would think it highly unlikely that any patient has recently been diagnosed with M.E. in England...
    Post by: It's M.E. Linda, Aug 29, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  17. It's M.E. Linda
    Post

    What we're not being told about ME - UnHerd (Tom Chivers)

    :) :emoji_clap::emoji_clap::emoji_clap: @Invisible Woman I also experienced the ‘chronic fatigue’ usagewith the senior partner of our GP...
    Post by: It's M.E. Linda, Aug 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  18. It's M.E. Linda
    Post

    Persistent Exertional Intolerance after COVID-19: Insights from Invasive Cardiopulmonary Exercise Testing, 2021, Singh, Systrom et al

    This was a study that I was cheering about! It explained so much. I have said (fairly repetitively) that I had horrendous symptoms during a tilt...
    Post by: It's M.E. Linda, Aug 14, 2021 in forum: Long Covid research
  19. It's M.E. Linda
    Post

    Persistent Exertional Intolerance after COVID-19: Insights from Invasive Cardiopulmonary Exercise Testing, 2021, Singh, Systrom et al

    Was it one of these (my selection of interesting OI studies) @alex3619 ? https://www.sciencedirect.com/science/article/pii/S2467981X20300044...
    Post by: It's M.E. Linda, Aug 12, 2021 in forum: Long Covid research
  20. It's M.E. Linda
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    @chrisb I am sure that the ME Association is the stakeholder, not Dr CS as an individual, so he will get access to view the final (embargoed)...
    Post by: It's M.E. Linda, Aug 3, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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