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  1. It's M.E. Linda
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This link no longer worked for me, so I found a new one that works...
    Post by: It's M.E. Linda, Jul 25, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  2. It's M.E. Linda
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    @JemPD I have ‘sent a message for you’ [MEDIA]
    Post by: It's M.E. Linda, Jul 23, 2021 in forum: General ME/CFS news
  3. It's M.E. Linda
    Post

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    Dr Charles Shepherd is also quoted in a 12.7.2021 article: Shepherd says: “I would have thought in something like [Altmann’s research] it would...
    Post by: It's M.E. Linda, Jul 14, 2021 in forum: Long Covid news
  4. It's M.E. Linda
    Post

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    I asked/suggested an alternative Control Group: [MEDIA]
    Post by: It's M.E. Linda, Jul 13, 2021 in forum: Long Covid news
  5. It's M.E. Linda
    Post

    NHS ME/CFS clinics asking patients for feedback RE new guideline and future changes

    A question has gone out to my local group to ask if anyone attending a local clinic has seen an invitation like this.
    Post by: It's M.E. Linda, Jul 9, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  6. It's M.E. Linda
    Post

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    MEAction U.K. https://www.meaction.net/2020/10/20/meaction-uks-membership-of-forward-me/ So, how to get invited to join Forward-ME? Would an...
    Post by: It's M.E. Linda, Jul 7, 2021 in forum: General Advocacy Discussions
  7. It's M.E. Linda
    Post

    Fundraising to er.. celebrate 25th anniversary of ME and birthday

    Just using the link Von provided above, I click through: Donate now> amount > message (or skip) > payment page (where PayPal is offered)...
    Post by: It's M.E. Linda, Jun 18, 2021 in forum: Fundraising
  8. It's M.E. Linda
    Post

    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    Within my local group, a whole cohort of members have recently complained about the lack of understanding of ME/CFS by local NHS Physios. (Another...
    Post by: It's M.E. Linda, Jun 17, 2021 in forum: Long Covid news
  9. It's M.E. Linda
    Post

    Fundraising to er.. celebrate 25th anniversary of ME and birthday

    Yes it does @Louie41
    Post by: It's M.E. Linda, Jun 17, 2021 in forum: Fundraising
  10. It's M.E. Linda
    Post

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    No idea! But you can do n=1 study on me, if you would like? 2001 PVFS - Yes, I had PEM. 2013 Sepsis > ‘CFS’ > ME/CFS (accepted as UK ME/CFS...
    Post by: It's M.E. Linda, Jun 13, 2021 in forum: ME/CFS research news
  11. It's M.E. Linda
    Post

    Physical exercise is a risk factor for amyotrophic lateral sclerosis: Convergent evidence from Mendelian randomisation.., 2021, Julian et al

    Fitbit congratulated me one day this week on my work at ‘cardio/peak’ levels - 5 mins use of my (less than half filled) watering can on the...
    Post by: It's M.E. Linda, Jun 12, 2021 in forum: Other health news and research
  12. It's M.E. Linda
    Post

    Recruiting: ME Research UK: Investigating sensory processing and cognitive function in people with ME: a pilot study

    Oxford (UK) vicinity - volunteers still required - about 25 x ME plus 25 x Healthy Controls Sadly, mobile volunteers only, because of the...
    Post by: It's M.E. Linda, May 20, 2021 in forum: Recruitment into current ME/CFS research studies
  13. It's M.E. Linda
    Post

    The Royal Swedish Academy of Sciences' report on long covid

    Request sent to Sten via Twitter [MEDIA]
    Post by: It's M.E. Linda, Apr 28, 2021 in forum: Long Covid news
  14. It's M.E. Linda
    Post

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    Oral Evidence 8 May 2018 Questions raised by Carol Monaghan with Sir Patrick Vallance about the release of data on the PACE trial...
    Post by: It's M.E. Linda, Apr 26, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. It's M.E. Linda
    Post

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    From memory, I think 3 MPs in the Committee for Science and Technology in the last Parliament tried something when discussing ‘Research...
    Post by: It's M.E. Linda, Apr 26, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. It's M.E. Linda
    Post

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    [MEDIA] @Amw66 brainfog time, ‘Jason/Rowe’, I am so, so sorry, give me more and I will try to find/tag them too :unsure: :thumbsdown:
    Post by: It's M.E. Linda, Apr 20, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. It's M.E. Linda
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    How many patients recovered back to their previous full lives after this ‘gradual and supervised rehabilitation’? And should you call it...
    Post by: It's M.E. Linda, Apr 16, 2021 in forum: General ME/CFS news
  18. It's M.E. Linda
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    There was never any recognition at all about “real life”. The clinic seemed to think that every day was identical, no allowances were factored in...
    Post by: It's M.E. Linda, Apr 15, 2021 in forum: General ME/CFS news
  19. It's M.E. Linda
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    It certainly isn’t perfect - it was a big thing to be announced in July 2020, for people left with debilitating symptoms who were still being told...
    Post by: It's M.E. Linda, Apr 15, 2021 in forum: General ME/CFS news
  20. It's M.E. Linda
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Ensure Friend and Friend’s friend have the following available at all Consultations: Long Covid: ME/CFS:...
    Post by: It's M.E. Linda, Apr 15, 2021 in forum: General ME/CFS news
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