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  1. Hoopoe
    Post

    Webinar: European ME Alliance: ME/CFS in Europe - EMEA Roundtable II, 8th April 2022, 14:00 CET

    Some results from the EMEA European survey [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] One of the...
    Post by: Hoopoe, Apr 8, 2022 in forum: General ME/CFS news
  2. Hoopoe
    Post

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    Detailed criticism has been published elsewhere already but it still be useful to write an overview of this complex topic situation from our...
    Post by: Hoopoe, Apr 8, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Hoopoe
    Post

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    Is anyone taking up the task of pointing out the problems with White's ideas? Could David Tuller write an article in their newsletter? I'm really...
    Post by: Hoopoe, Apr 8, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Hoopoe
    Post

    Fatigue and Exercise Intolerance as Initial Manifestations of a Nonsyndromic Mitochondrial Disorder Due to the Variant m.3243A>G, 2022, Finsterer

    The technical term for a situation where a person has two mitochondrial genomes, one normal and the other with a disease causing mutation, is...
    Post by: Hoopoe, Apr 6, 2022 in forum: Other health news and research
  5. Hoopoe
    Post

    Coming study: Short-time behavioural intervention in post-Covid syndrome: A pragmatic randomised controlled trial (SIPCOV), Wyller, Flottorp et al

    Really, can we see the evidence for this causal relationship?
    Post by: Hoopoe, Apr 6, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Hoopoe
    Post

    A Causal-Pathway Phenotype of Chronic Fatigue Syndrome due to Hemodialysis in Patients with End-Stage Renal Disease, 2022, Asad, Maes et al

    It might be a coincidence but there was a recent study which found a possible association between ME/CFS and the TPPP gene. If one looks at the...
    Post by: Hoopoe, Apr 5, 2022 in forum: ME/CFS research
  7. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    Has medical science developed tests of stamina? By stamina I mean the ability to keep doing an activity for longer periods of time with limited...
    Post by: Hoopoe, Apr 5, 2022 in forum: ME/CFS research
  8. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    Regarding sustained metabolism. I've been doing walks with other people and one clearly observable difference is that I don't have the same...
    Post by: Hoopoe, Apr 5, 2022 in forum: ME/CFS research
  9. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1280928/ For me, the progressive deterioration described as occurring in patients enrolled in a...
    Post by: Hoopoe, Apr 4, 2022 in forum: ME/CFS research
  10. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    You could do an exercise test if you wanted to even while having the flu or otherwise feeling bad.
    Post by: Hoopoe, Apr 4, 2022 in forum: ME/CFS research
  11. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    Some thoughts on the CPET. I agree that the CPET might not be a good test because it doesn't replicate exactly what happens in daily life....
    Post by: Hoopoe, Apr 3, 2022 in forum: ME/CFS research
  12. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    Do you have information that demonstrates that changes to metabolites of the size we're seeing in these ME/CFS metabolomics studies can be...
    Post by: Hoopoe, Apr 1, 2022 in forum: ME/CFS research
  13. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    Figure 11 looks interesting. The unknown metabolite 15245 increases after each exercise test in controls, but in patients much less. Maybe this...
    Post by: Hoopoe, Apr 1, 2022 in forum: ME/CFS research
  14. Hoopoe
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    I will read this properly later. In the meantime: looking at the change in glutamate-related pathways, maybe the exertion intolerance in ME/CFS is...
    Post by: Hoopoe, Mar 31, 2022 in forum: ME/CFS research
  15. Hoopoe
    Post

    Lightning Process - discussion thread

    "People with CFS believe that they need to conserve energy because there is not enough in the bank" So this sounds like someone read a CBT...
    Post by: Hoopoe, Mar 28, 2022 in forum: Psychosomatic theories and treatments discussions
  16. Hoopoe
    Post

    Experiences of a cognitive behavioural therapy (CBT) intervention for fatigue in patients receiving haemodialysis, 2022, Picariello, Moss-Morris et al

    What CBT for fatigue means here: Renal fatigue explained, Understanding renal fatigue and alternative explanations, Fatigue self-monitoring...
    Post by: Hoopoe, Mar 27, 2022 in forum: Other psychosomatic news and research
  17. Hoopoe
    Post

    Experiences of a cognitive behavioural therapy (CBT) intervention for fatigue in patients receiving haemodialysis, 2022, Picariello, Moss-Morris et al

    I think this is a warning signal that it's not actually improving fatigue. If it did, participation in the therapy would be net energy gain.
    Post by: Hoopoe, Mar 27, 2022 in forum: Other psychosomatic news and research
  18. Hoopoe
    Post

    Physicians with long Covid confront a medical establishment eager to classify their illness as psychological (2022) Tuller

    I would love to see one of the psychobabblers try to explain how PEM is caused by thoughts and behaviours. Probably they are psychobabblers...
    Post by: Hoopoe, Mar 27, 2022 in forum: Long Covid news
  19. Hoopoe
    Post

    Should Burnout Be Conceptualized as a Mental Disorder?, 2022, Nadon et al

    I've heard with the new DSM, more than half the population would be considered to have a psychological disorder.
    Post by: Hoopoe, Mar 26, 2022 in forum: Other health news and research
  20. Hoopoe
    Post

    Development of an inpatient rehabilitation pathway for motor functional neurological disorders: Initial reflections, 2022, Polich, Perez, Baslet et al

    Wouldn't the equivalent of a "software problem" in a human body be a genetic disorder?
    Post by: Hoopoe, Mar 26, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
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