(Responding to a post that has now been moved) I think this is not about pupil responses but movement of the eyes. Saccades are one type of...
I have the impression that the more severely ill patients don't always understand the patients like me who are less affected. They seem to think...
“What we’re trying to do is generate a unique ME/CFS signature based on characteristic changes to eye movements, a behaviourial signature that is...
There is a chance that there will soon be movement from the UK government on a national ME strategy. Remember this? [MEDIA] The Action for ME...
Does anyone think that PEM is more likely to occur in "new" situations? Situations that are not a relaxed routine but where you're learning? They...
TPPP sounds like it could have something to do with cadherins. At least this article says that cadherins interact with microtubules....
An article that explains what TPPP does Tubulin polymerization promoting protein 1 (TPPP1) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3925458/
Information on the TPPP variant associated with ME/CFS can be found here : https://www.ncbi.nlm.nih.gov/snp/rs139264145 Nothing interesting...
Yes mutations in the TPPP gene affect multiple sclerosis.
Regarding sleep and the brain sorting things out. In the evening I tend to have ideas and plans for the next day, but upon waking up, the details...
I'm not sure I understand what that means. Maybe we are thinking about the same thing? My thought process was: since PEM is delayed and tends to...
Is it a dumb question to ask whether PEM could have something to do with the physical and mental activity stimulating myelin growth and there...
Largest ME/CFS genetic study to date. Three different cohorts totaling more than 2500 patients. First Immunochip study in ME/CFS. Possible...
I wrote this because I have a medical appointment tomorrow and have anxiety over being unable to accurately describe what is wrong and then being...
I still struggle to explain what the illness actually feels like in my body and how it affects me. In part because there are no commonly used...
I think multisystem is meant to say that patients can have many seemingly unconnected symptoms. It can't be a reference to a precise disease...
I tried glutamine and seemed to get an energy boost from it for a day. The stimulation then triggered a mild worsening. I find that it's not...
[MEDIA] "I want high quality in all research, including me. The Norwegian LP study is designed so that you can trust the result." It's an...
This is an important study because it shows that healthy people exist that move as little as ME/CFS patients, but that these people do not have...
0.91 mmol/L with a reference range of 0.9 to 1.7 Technically not yet low, but close enough. Is this a suspicious result? Aren't people with...
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