I think it can be psychologically damaging to be told that the origin of symptoms is psychological or behavioural when that is not true. It sets...
If ME was a psychological or behavioural problem, it would be liberating for patients to receive the right treatment. They would feel understood...
Someone that expects to cure an illness with psychotherapy sees the illness as 100% psychological.
I benefit from carnitine supplementation. Would this be predicted for any metabolic phenotypes described here?
Clinics that provide care, develop knowledge and facilitate research should be the default approach to serious, unexplained chronic illness. It's...
Sounds promising.
As far as I know (which is not much): ME/CFS isn't recognized as disabling illness here in Italy. Some advise pretending that you have some other...
The paper is light on details on the exact procedure carried out. Was collection of data dependent on school attendance? PS: this would be...
This thread has posts merged from several threads [MEDIA] Not sure what to make of this. It's hard to believe this is real.
Difficult paper to understand. What are they saying about the relationship between HLA class I, rs4711249 and the VARS2 gene?
My suspicion is that certain rehab experts are confusing "chronic fatigue" with "chronic fatigue syndrome". They think they know how to treat...
Imagine if there was a situation like this: Some people believe enteroviruses cause ME and they have devised a treatment with antivirals that is...
CBT/GET proponents are clearly proposing a psychological cause of ME/CFS - even if they try to hide this sometimes when interacting with the...
That's not an obstacle. They will argue that doctors should prefer the FND diagnosis (or whatever other label they decide is convenient) because...
This seems easy to answer: if ME/CFS is no longer a diagnosis that is convenient for them, they will try to replace it with one that is. This is...
Funny how perspective is everything. I thought that we patients learn how to ignore symptoms as much as possible.
We already had the PACE trial which tested a similar idea and showed it doesn't work. These people may have been taught to believe that they have...
My prediction for the inevitable SMC briefing: they can't openly go against NICE but unnamed patient-activists that may or may not exist as...
I can't tell if my pounding heart, chest pain, exhaustion, weakness and malaise is due to a ME/CFS flare or due to the 2nd dose. There was a lot...
Had my 2nd Pfizer dose this morning. People have to wait 15 minutes before leaving and while I was waiting, a kid had an adverse reaction to the...
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