For me the real revelation from Hughe's article is: In 2001, the York Reviewers noted high dropout rates and the unreliability of self-reported...
p = 0.048
I think this study is an example of how (as usual) the healthcare system is concerned first of all with helping itself. If patients are helped, it...
Professors cracks under cognitive dissonance, flees into a fantasy world where long covid is not a big deal.
Do you think those who promoted CBT/GET for a long time are now quietly moving on to other things because they can see the end of CBT/GET approaching?
If the draft guidelines stick, there will be a misinformation campaign to convince the public that CBT/GET rehab is valid and was withdrawn for...
Individualized treatment is more complex and thus requires even more rigorous methods to assess treatment efficacy. Not less rigorous ones. It's...
The PEM related questions lack specificity: After sustained physical or intellectual activity, or prolonged standing: “I feel crashed, relapsed...
I wonder if these people take themselves seriously or if it's just an exercise in publishing random crap to increase one's number of publications?
Sounds like rehab is ineffective. Sounds similar to what was reported by Fluge and Mella (increased consumption of amino acids for energy...
From the little information available, it sounds like this will be fitbit-assisted pacing. I think this could be a useful study.
I wonder if a weak antibody response is also associated with development of the ME/CFS-like long covid subtype.
Interesting but I did not see a link to a published paper or any information about the gene. They're still in the early stages of research.
I think people have unrealistic hopes about being able to control the trajectory of the illness with some treatment approach, be it pacing or...
A lot of this makes sense but the antibodies part seems questionable.
This group seems to exist to promote the lightning process, not primarily to give a voice to those who have recovered from ME/CFS and...
Attempting to join the Voices of Recovery facebook group brings up a questionnaire that asks What is your experience of the Lightning Process?...
Sounds like this could be relevant for me as I have an empty sella (a flattened pituitary). One of the things I learned is that empty sella can be...
Exactly what Crawley et al said several times, failing to mention that this is based on nonsense statistics.
I agree, the ME/CFS community needs to first get over its internal divisions and show more humility. Then collaboration becomes possible. I...
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