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  1. Hoopoe
    Post

    Preprint: Persistent circulating SARS-CoV-2 spike is associated with post-acute COVID-19 sequelae, 2022, Swank et al

    Long covid has made the idea of persistent infection much more credible. One argument against persistent infection in ME/CFS has been that as the...
    Post by: Hoopoe, Jun 17, 2022 in forum: Long Covid research
  2. Hoopoe
    Post

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I wonder about this too. FND has some patient support now, but in 20 years, will the majority of FND patients rebel against what they perceive as...
    Post by: Hoopoe, Jun 17, 2022 in forum: Psychosomatic theories and treatments discussions
  3. Hoopoe
    Post

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I read the article by FND portal. I see nothing in there that would validate a diagnosis of FND. The person has some neurological illness that...
    Post by: Hoopoe, Jun 17, 2022 in forum: Psychosomatic theories and treatments discussions
  4. Hoopoe
    Post

    Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, Bertinat et al (2022)

    I've had an arginine infusion as part of a medical test and it made me feel good. Maybe that's got something to do with NO?
    Post by: Hoopoe, Jun 16, 2022 in forum: ME/CFS research
  5. Hoopoe
    Post

    Core Outcome Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID): ... ‘PC-COS’, 2022, Munblit et al

    The outcomes seem sensible to me.
    Post by: Hoopoe, Jun 16, 2022 in forum: Long Covid research
  6. Hoopoe
    Post

    'Disability as identity' - discussion thread

    Can we even choose an identity? I have repeatedly seen comments that lecture people with chronic illness for identifying as being chronically...
    Post by: Hoopoe, Jun 16, 2022 in forum: General disability topics and advocacy
  7. Hoopoe
    Post

    'Disability as identity' - discussion thread

    One might call it "chronic EBV"?
    Post by: Hoopoe, Jun 16, 2022 in forum: General disability topics and advocacy
  8. Hoopoe
    Post

    'Disability as identity' - discussion thread

    This is very possible, as I don't have contact with that age group and little exposure to its social media.
    Post by: Hoopoe, Jun 14, 2022 in forum: General disability topics and advocacy
  9. Hoopoe
    Post

    'Disability as identity' - discussion thread

    Not sure about this. I generally take a skeptical stance about claims of anyone faking illness for attention or gains. This must surely exist as...
    Post by: Hoopoe, Jun 14, 2022 in forum: General disability topics and advocacy
  10. Hoopoe
    Post

    'Disability as identity' - discussion thread

    I'm not sure how anyone in touch with reality could come to the conclusion that ME/CFS is the result of people wanting an identity and meaning...
    Post by: Hoopoe, Jun 13, 2022 in forum: General disability topics and advocacy
  11. Hoopoe
    Post

    'Disability as identity' - discussion thread

    What is meant with disability as identity? Does it just mean viewing myself as disabled?
    Post by: Hoopoe, Jun 13, 2022 in forum: General disability topics and advocacy
  12. Hoopoe
    Post

    Long Covid in the media and social media 2022

    What is meant with disability as identity? Does it just mean viewing myself as disabled? _______________ Go to this thread for further discussion...
    Post by: Hoopoe, Jun 13, 2022 in forum: Long Covid news
  13. Hoopoe
    Post

    Exercise-enduced CFS?

    Hi Accurately diagnosing CFS is not easy and it becomes more difficult when the person is mildly affected. In my opinion in your case one should...
    Post by: Hoopoe, Jun 13, 2022 in forum: Post-Exertional malaise and fatigue
  14. Hoopoe
    Post

    A thread to talk about muscle biopsies

    5 days have passed since the biopsy. I can walk without problems in the house, but I'm not supposed to use the leg much until the sutures have...
    Post by: Hoopoe, Jun 12, 2022 in forum: Laboratory and genetic testing, medical imaging
  15. Hoopoe
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I took part in this study and had low manganese.
    Post by: Hoopoe, Jun 10, 2022 in forum: ME/CFS research news
  16. Hoopoe
    Post

    Preprint: Impact of imperfect diagnosis in ME/CFS association studies, 2022, Malato et al

    Very useful observation, and good to have some statistical modeling. I've been thinking something similar for a while. My guess is that the...
    Post by: Hoopoe, Jun 9, 2022 in forum: ME/CFS research
  17. Hoopoe
    Post

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    These microclots can't be the cause of PEM if they're found in other diseases not associated with PEM.
    Post by: Hoopoe, Jun 9, 2022 in forum: ME/CFS research
  18. Hoopoe
    Post

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    Since RA is not generally associated with PEM that suggests these microclots are not causing PEM (at least not alone). If we ignore that for...
    Post by: Hoopoe, Jun 9, 2022 in forum: ME/CFS research
  19. Hoopoe
    Post

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    Having thought about this, I don't care if it makes no sense or doesn't fit with established knowledge. We need a replication to confirm or refute...
    Post by: Hoopoe, Jun 8, 2022 in forum: ME/CFS research
  20. Hoopoe
    Post

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    I hope this means that there will soon be a replication attempt. It does look like the kind of finding that would help us a lot in making sense of...
    Post by: Hoopoe, Jun 8, 2022 in forum: ME/CFS research
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