deleted my comment - it didn't add to the discussion - not cognitively up to it today sorry @Wonko I saw you'd already 'liked' - unlike if you...
I hope you are right, but I'm cynical.
What records of death from this will be collected? My guess is none. A lot of people would have to die, or inconvenient people who are noticeable...
Yes they are different. Some patients are not having comorbidities like EDS addressed. Where there is confusion it isn't originating from...
It would benefit many people with, or suspected of having, ME/CFS to be examined by a knowledgeable specialist for hEDS. It should be in the new...
@Joh thanks for your reply - sorry but I confused shortlist with nomination - I thought the nominations were already decided but will be announced...
A possible objectively measured marker? The references to other research into sight issues was interesting to note as I wasn't aware of it...
Ah yes!! of course!
@arewenearlythereyet - what on earth is that in the photo you posted?
I thought the shortlist was agreed over a week ago? Can't remember where I read that tho'.
My mother's going to be relieved when I tell her it's not all her fault it's my husband's. edit - typo
As a cynic I think we have to be more visible (which we struggle with for obvious reasons) If we are seen, and seen to be lobbying, that makes it...
@large donner - Stretching speculation a bit far imo. I prefer to stick with what can be evidenced. That's bad enough.
So what's it going to take? Someone in the family of a senior politician becoming ill with ME too? Seriously, how are we going to win this?
This would be helpful. Welcome to the S4ME
:hug:
[MEDIA] [MEDIA] Hope these are ok
Keith Geraghty's twitter posts today (c.4- 5 hours or so ago) are pertinent to this criticising some of the research supporting GET prior to...
Ignore the large patient-reported bump under the rug (coughPACEcough)
Stupid question : Does our position make a difference? (or - if I stand on my head will I recognise a calf when I see one?) apologies if that's...
Separate names with a comma.
