I used to innocently believe that I could assume an effort towards accuracy and integrity in scientific research and that the results are the...
Why? How? Based on what?
I'm sorry you are having such an awful rough time. Thank you for letting us know how you are doing. I don't think it's surprising that you are...
As of this morning the petition letter says this (there is no no.6): I haven't followed all the detail of the discussion of content above, and...
Interesting interview. I would hope re: the training video mentioned that obvious misogyny would be obvious, and that it wasn't just evident to...
@Kalliope - It would be a good idea to make it obvious that people from any country can sign, I think
If there weren't substance to the criticisms of PACE nobody would have been persuaded to sign the letter to the Lancet. No one would have done so...
:thumbup: for the rant.
@sb4 Re a chocolate dessert - Have you tried looking into recipes that use avocado as the base to make something similar to a mousse? I've eaten...
I don't think I've seen funding figures mentioned as a category - ie the lack of funding.
To me this seems to be, in effect, a marketing exercise.
My conclusion is that the medical director of the Mayo Clinic has a 'belief' about ME, or something unethical is taking precedence over the...
@JaimeS @Alvin New thread? I think it's a great idea and I hope you get a good level of interest
I can be happy with 'malaise' as a term if I can be sure my doctor/s and other health professionals understand the term in it's medical usage and...
It would be great if someone who was an S4ME member and would liase with patients here were to join PAG.
I agree - modern technology allows for many easy ways of engaging with patients; there's little excuse. I'm becoming increasingly uncomfortable...
I find that helps usually too. I use the terms cognitive dysfunction/impairment or brain fog depending on the situation. Brain fog is easy to...
Thanks @JaimeS, that helps too.
Does anyone who gets brainfog experience it as a delayed exacerbation with PEM? With me it worsens more immediately, just wondered if that's...
Hmm - should have taken more care in what I wrote. Have edited.
Separate names with a comma.