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  1. Skycloud
    Post

    David Tuller: Trial By Error: Professor Edwards' Letter to MRC's Fiona Watt

    I used to innocently believe that I could assume an effort towards accuracy and integrity in scientific research and that the results are the...
    Post by: Skycloud, Aug 30, 2018 in forum: General ME/CFS news
  2. Skycloud
    Post

    Illness beliefs of adolescents with CFS and their parents: the perceived causes of illness and beliefs about recovery, 2018,Loades et al (inc Chalder)

    Why? How? Based on what?
    Post by: Skycloud, Aug 28, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Skycloud
    Post

    Alone and Needing Back Surgery-need advice

    I'm sorry you are having such an awful rough time. Thank you for letting us know how you are doing. I don't think it's surprising that you are...
    Post by: Skycloud, Aug 28, 2018 in forum: Pain and Inflammation
  4. Skycloud
    Post

    Petition: Stop CDC from hiring shoddy contractor for ME treatment guidelines

    As of this morning the petition letter says this (there is no no.6): I haven't followed all the detail of the discussion of content above, and...
    Post by: Skycloud, Aug 28, 2018 in forum: Petitions
  5. Skycloud
    Post

    Q&A with Dr. Mark Pimentel: Believing IBS is a disease of ‘nervous, anxious women’ is ‘antiquated’ and ‘wrong’

    Interesting interview. I would hope re: the training video mentioned that obvious misogyny would be obvious, and that it wasn't just evident to...
    Post by: Skycloud, Aug 28, 2018 in forum: Other psychosomatic news and research
  6. Skycloud
    Post

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    @Kalliope - It would be a good idea to make it obvious that people from any country can sign, I think
    Post by: Skycloud, Aug 26, 2018 in forum: Petitions
  7. Skycloud
    Post

    BMJ: Pressure grows on Lancet to review “flawed” PACE trial

    If there weren't substance to the criticisms of PACE nobody would have been persuaded to sign the letter to the Lancet. No one would have done so...
    Post by: Skycloud, Aug 23, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Skycloud
    Post

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    :thumbup: for the rant.
    Post by: Skycloud, Aug 19, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Skycloud
    Post

    Ketogenic diet

    @sb4 Re a chocolate dessert - Have you tried looking into recipes that use avocado as the base to make something similar to a mousse? I've eaten...
    Post by: Skycloud, Aug 12, 2018 in forum: Other treatments
  10. Skycloud
    Post

    A masterlist of ME facts & the citations that support them

    I don't think I've seen funding figures mentioned as a category - ie the lack of funding.
    Post by: Skycloud, Aug 10, 2018 in forum: MEpedia
  11. Skycloud
    Post

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    To me this seems to be, in effect, a marketing exercise.
    Post by: Skycloud, Aug 6, 2018 in forum: General ME/CFS news
  12. Skycloud
    Post

    USA - Mayo clinic

    My conclusion is that the medical director of the Mayo Clinic has a 'belief' about ME, or something unethical is taking precedence over the...
    Post by: Skycloud, Aug 6, 2018 in forum: USA clinics and doctors
  13. Skycloud
    Post

    The putative glymphatic signature of chronic fatigue syndrome: A new view on the disease pathogenesis and therapy, 2018, Wostyn et al

    @JaimeS @Alvin New thread? I think it's a great idea and I hope you get a good level of interest
    Post by: Skycloud, Aug 1, 2018 in forum: ME/CFS research
  14. Skycloud
    Post

    Solve ME/CFS Initiative - Editorial: PEM. It's time to Retire the Term

    I can be happy with 'malaise' as a term if I can be sure my doctor/s and other health professionals understand the term in it's medical usage and...
    Post by: Skycloud, Aug 1, 2018 in forum: General ME/CFS news
  15. Skycloud
    Post

    CMRC minutes from July. Countess of Mar has joined CMRC representing Forward ME

    It would be great if someone who was an S4ME member and would liase with patients here were to join PAG.
    Post by: Skycloud, Aug 1, 2018 in forum: General ME/CFS news
  16. Skycloud
    Post

    CMRC minutes from July. Countess of Mar has joined CMRC representing Forward ME

    I agree - modern technology allows for many easy ways of engaging with patients; there's little excuse. I'm becoming increasingly uncomfortable...
    Post by: Skycloud, Aug 1, 2018 in forum: General ME/CFS news
  17. Skycloud
    Post

    PEM discussion thread

    I find that helps usually too. I use the terms cognitive dysfunction/impairment or brain fog depending on the situation. Brain fog is easy to...
    Post by: Skycloud, Jul 31, 2018 in forum: Post-Exertional malaise and fatigue
  18. Skycloud
    Post

    The putative glymphatic signature of chronic fatigue syndrome: A new view on the disease pathogenesis and therapy, 2018, Wostyn et al

    Thanks @JaimeS, that helps too.
    Post by: Skycloud, Jul 31, 2018 in forum: ME/CFS research
  19. Skycloud
    Post

    PEM discussion thread

    Does anyone who gets brainfog experience it as a delayed exacerbation with PEM? With me it worsens more immediately, just wondered if that's...
    Post by: Skycloud, Jul 30, 2018 in forum: Post-Exertional malaise and fatigue
  20. Skycloud
    Post

    PEM discussion thread

    Hmm - should have taken more care in what I wrote. Have edited.
    Post by: Skycloud, Jul 30, 2018 in forum: Post-Exertional malaise and fatigue
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