As an aside, Komaroff is an editor for UpToDate's CFS content, which still promotes CBT/GET. The content screenshotted below was "last updated:...
Unfortunately, that is my impression. And this is part of the reason AfME is so sensitive to criticism for past efforts. They meant well, even if...
One can only hope this is more than just words. The new CDC training materials that should to be ready this fall will help with this. My...
I've been told that AfME's research strategy is "try everything and see what sticks". Because at this point, no one knows what will work. AfME...
Alzheimer's drug development tends to focus on protein aggregates in the brain. And they've all failed. Alzheimer’s disease: why insulin is a new...
Unexpectedly, I had an encounter with someone from AfME. I won't say more as I don't want to identify this person. I learned that a goal of the...
The article quote below seems to say that the study was done only on those who report having "recovered". So, it would be 60% "recovered" by 5...
Took Jarraw NAC up to 1800mg over a period of about 3 months. Never noticed any effects at all.
One (two?) of the biggest pediatric medical scandals of the 21st century?
Yes, I thought about commenting on that, but the article doesn't technically get it wrong. The 88% recovered by 12 years only refers to patients...
For many others, it's also a matter of society not investing any money into biomedical research and doctor training that could help with...
Good article, but has some issues. It's definitely improved/been edited since I first read it a few days ago. First off, the use of the term...
I've only been diagnosed medically with SEID ME/CFS, so I'm not 100% sure about the others. But a patient can be diagnosed with SEID even if they...
SEID (current clinical diagnostic criteria in US) is not technically a diagnosis of exclusion. This change was made by the IOM to get more...
Unger said the updated CDC Information for Healthcare Providers will be available "in June". Previously, we only knew it would be sometime this...
[ATTACH] If only more US healthcare providers would get the message that their government no longer recommends GET. There is no law that...
Association Between Vitamin D Supplementation, Multiple Sclerosis Relapse Still Unclear...
What can happen is that psychiatry will say "We don't know what you have" and "we can't help you". While medical doctors will attribute any...
Agreed. I would think “Patients who have learned to listen to their bodies” should be, by definition, already exercising at an appropriate level....
As much as I'd like to criticize my healthcare provider for their current treatment recommendation of exercise + antidepressants + supportive...
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