https://www.nationalmssociety.org/About-the-Society/News/FDA-Expands-Use-of-Gilenya®-(fingolimod)-for-Child (bolding in original) “As the first...
https://www.congress.gov/bill/115th-congress/senate-resolution/508/cosponsors
Till they reach the end? ;)
KPAX002 for Chronic Fatigue Syndrome part 2: controlled study says no...
Seems those who defend PACE are all eventually rewarded. Congratulations, Jon Stone. :yuck: [ATTACH]
The NHS still lists mental health problems as a risk factor for CFS/ME. A casual reader might assume CFS/ME is at least partly a mental health...
Having been through about 10 relapses and partial remissions in my life, I can say that (similar to what Workwell describes) during remissions I...
Unfortunately, everything we need takes money. We require a professional PR firm to shape public opinion. Apologies if I've offended anyone, but...
"I needed to study on-line e.g. open university or equivalent" Unfortunately, online study was not available in the 1980s. So there were years...
A 2015 CDC multisite clinical assessment concluded, "ME/CFS patients show significant impairment, particularly in vitality and physical...
Remember when Peter White called for an end of the distinction between mental and neurological conditions. Maybe he's still trying.
In her CDC Stakeholder talk "ME/CFS: The Invisible Disease and its Educational Implications for Young People”, Faith Newton, Ed.D. mentioned that...
A couple pictures from Millions Missing at San Francisco City Hall. [ATTACH] [ATTACH]
I assume that a recording and transcript of today's Stakeholder Conference Call will eventually be available on the same webpage as past...
Unger talking about how the CDC is trying to determine the prevalence of ME/CFS via state health agencies. Information for Healthcare Providers...
This is similar to last year's CDC post, but there are some changes.
https://www.cdc.gov/Features/cfsawarenessday/index.html
1 hour to start. The CDC has a new post "May 12 is ME/CFS and Fibromyalgia International Awareness Day".
How about this instead: "There is no cure or even an effective treatment, and recovery is rare." I feel it's important that people know there...
I think many of us are fed up with well-intentioned but misguided behavioral interventions that have little relevance to ME/CFS reality.
Separate names with a comma.
