In my opinion, ME/CFS needs a helluva lot more ACT UP, and a lot less calm deference towards those that do us harm. Silence = Death (or at least...
Received a 2 page written letter from the California Department of Managed Healthcare (DMHC) today, regarding the issue of Graded Exercise Therapy...
In the United States, we still have similar desensitization thinking, but it's slowly changing. The Mayo Clinic website currently has this nonsense:
Begum's Wikipedia entry has been updated again. Now it's a "rare form of neurological chronic fatigue syndrome known as myalgic...
Just an update on items currently pending: Request to Kaiser Permanente for ME/CFS specialist care - DENIED California Department of Managed...
For myself, I have a lot in common with MS. I find very little in common with fibromyalgia or IBS. This might make an interesting poll.
"It is a complicated illness but the majority of children get bitter with specialist treatment." There, fixed it. :unsure:
First they tell you antidepressants are the key to your recovery. When that doesn't work, they tell you stimulants are the key to your recovery....
Have you ever called the National Multiple Sclerosis Society? In my experience, even when you tell them you have ME/CFS and not MS, they will...
If I demand better quality ME/CFS research, does that make me a perfectionist?
A decent undergraduate McMaster University student video about "chronic fatigue syndrome". It covers the PACE Trial and correctly concludes the...
http://psychiatry-mentalhealth.pulsusconference.com/call-for-abstracts/child-and-adolescent-psychiatry
Chronic Fatigue Syndrome included in somatoform disorders. http://mps.ca/spring18/ Current Conceptualization and Assessment of Somatoform...
Accredited US continuing education course for nurses. Course materials strongly promote CBT/GET....
https://psychosomatic.conferenceseries.com/
The article claims that the procedure can stop MS progression for 5 years or so. It doesn't result in remission.
Healthwise's "Contact Us" webpage was broken, and their webmaster was grateful to me for letting her know about it. Once fixed, I sent Healthwise...
AfME sounds a bit like Healthwise. Acknowledging that PACE results are unreliable, but unwilling to completely let go of CBT/GET, citing anecdotal...
I wonder if any ME/CFS patients have tried this (not a recommendation).
This article was also mentioned briefly on another thread. But it probably deserves its own thread because it's pretty amazing. :)...
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