Even tiny changes could affect healthcare for tens or hundreds of thousands of patients. Kaiser Permanente has roughly 50k ME/CFS patients. The...
On a related note, I thought I would ask Kaiser Permanente member services if they have an ME/CFS specialist on staff. I'm certain they don't, but...
Some cities in the United States have similar problems with "frequent fliers". It's a complicated issue that isn't likely to be solved anytime...
Made it through about 45 minutes before my brain gave out. Lipkin emphasized he thinks this is many many diseases, making an analogy with cancer....
Seems to let me vote again every time I visit the site. Once, I threw in a random "Yes" vote and became female just to keep it interesting.
Press release about a new RNA-based blood test for fibromyalgia. Seems like a big breakthrough if it actually works....
What started as an effort to get Kaiser Permanente to remove GET as a recommended treatment for ME/CFS turned into trying to get Healthwise to...
I phoned the California Medical Board, and was given an email address to write to. My issue was referred to as a "Scope of Practice" issue....
My sleep specialist friend is big on practicing falling asleep to get better at it. He says to pick a day when you are really sleepy and practice...
Agreed. The assumption that ME/CFS unrefreshing sleep can be relieved by strict sleep hygiene is mostly misguided, in my opinion. A sleep...
A couple years ago, a friend of a friend of mine ate a ghost pepper, and while repeatedly vomiting tore his esophagus. He nearly died and spent...
Eating an insanely hot Carolina Reaper pepper on YouTube for ME/CFS advocacy. Includes a list of celebrities with ME/CFS. And vomiting. Lots and...
8-9 hours usually. 9-11 hours in a crash.
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