A couple more comments on the Clinical Care section. The CDC actually weakens the argument for patients to be able to see a ME/CFS specialist. It...
The "Clinical Care" section is so nonspecific. But what is "good clinical care"? My healthcare provider says it is "anti-depressants, regular...
This Mozart therapy sounds much better than Beethoven therapy. [ATTACH]
There are a few of us with childhood onset resembling acute flaccid myelitis, which is thought often to be caused by Enterovirus D68.
Related thread on UCSF's CRISPR research (no mention of T cells):...
Perhaps Nath will come out and say ME/CFS really is a neurological disorder. Just kidding. ;)
Study: http://n.neurology.org/content/early/2018/07/03/WNL.0000000000005906 Summary:...
https://www.fda.gov/Drugs/DrugSafety/ucm611032.htm
https://www.ucsf.edu/news/2018/07/411031/crispr-toolkit-unlocks-new-ways-fight-disease How CRISPR Tools are Unlocking New Ways to Fight Disease...
Brain volume loss in Multiple Sclerosis patients with no evidence of disease activity predicts future disability. Brain atrophy has recently been...
Thank you Carol Head. As a mere patient, my letter to Forbes was ignored. This is exactly what we need from ME/CFS organizations. The old patient...
Just to point out one of the absurdities in this debate. My doctor wants to diagnose ME, but the healthcare provider he works for does not allow...
At least one member of the board of directors of Action for ME believes the Lightning Process completely cured their ME. Bedridden at times to...
Got an update today from the CDC on the delayed "Information for Healthcare Providers". I had written to let them know that Dr. Unger had stated...
https://www.lupus.org/general-news/entry/senate-committee-advances-funding-for-lupus-research Today, the Senate Appropriations Committee voted to...
I read it on Facebook. Sign in was not required.
I got the phone number for editorial at Forbes, and have now presented my complaint about the article to an actual staff member. Usually nothing...
At Invest in ME, Dr. Unger said the CDC Information for Healthcare Providers would be available in June. That would mean tomorrow (Friday). We've...
There is a feedback link at the bottom of the article, if anyone would like to email feedback directly to Forbes.
On Twitter. [ATTACH]
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